Categories
Medical

Appreciating a Doctor Is in a Patient’s Interest

Operation

Gone are the days when we had a family doctor who attended the needs of everyone in the household. Instead I have 17 doctors entered in my phone contacts list, each with their own specialty. Add to that eight doctors unique to Robert and we have a whole classroom of doctor’s being schooled on aging issues and dwarfism.

Where would we be without our cadre of physicians? Good question for National Doctors Day on March 30th, a day set aside every year since 1933 to honor physicians for the work they do for their patients, the communities they work in, and for society as a whole.

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Doctors invest a decade or more in medical training and have student loans averaging around $200,000. Despite healthy physician salaries—averaging $223,000 for primary care and $329,000 for specialists—these loans take years to pay down. Doctors typically work 60 to 70 hours a week thereby sacrificing time with their families and for personal needs.

It’s in the patient’s interest to appreciate the doctors we depend on for our health care needs because they’re quitting medicine in alarming numbers. Nearly half of doctors experience physician burnout caused by bureaucratic tasks, insufficient time with patients, and long hours, to name a few. The 10 to 20 hours a week spent on administration detracts from the most rewarding part of a doctor’s job and their reason for being drawn into the profession in the first place—patient care.

A doctor shortage is exacerbated by the growing number of aging patients and physicians. Patients age 65 or older generally require more specialty care and, in the next five years, 35% of working physicians will be of retirement age. And even before retirement, about one third of doctors report their intention to reduce work hours in the next 12 months. The effects of this shortage are already being felt. Patients often have to wait weeks to get an appointment with a specialist.

There are several steps patients can take to encourage physicians to continue practicing medicine. Please consider doing one or more of the following: 

  • Since physicians rely on online reviews to bring new patients through the front door, take the time to write a fair and accurate review that reflects the positive aspects of your patient experience with the doctor. This will help offset your doctor’s worry about receiving negative reviews.
  • Send thank-you cards to physicians you value.
  • Bring your doctor a red carnation, the representative flower of National Doctor’s Day.
  • Follow your doctor’s sound medical advice so that they don’t feel like you’re wasting their time.
  • Ask your doctor how they’re doing. When I did this at my annual cardiology check-up last month, I was surprised when my cardiologist disclosed his personal struggle navigating a divorce with two teenage children.
  • Pray for your doctors.
  • Make an honorary donation to an organization that would recognize the doctor you honor. For example, worthy candidates would be doctors on Little People of America’s (LPA) Medical Advisory Board, https://www.lpaonline.org/index.php?option=com_content&view=article&id=106:medical-advisory-board&catid=19:site-content&Itemid=103. They volunteer their time at free medical clinics and workshops at LPA national and regional conferences.

Image credit: https://pixabay.com/photos/operation-operating-room-doctor-540597/

For more of my writings, go to https://angelamuirvanetten.com where you can subscribe to my weekly blog and find information and buy links to my dwarfism trilogy memoir.

Categories
International

War Impact on Disabled in Ukraine

Ukraine map

When Russia invaded Ukraine one year ago we knew it would be bad, but who could have predicted the largest refugee crisis since World War II? At the six month marker, the UN Refugee Agency reported well over a third of Ukrainians (14 million people) as being displaced—half within Ukraine and half across borders. Who knows what the numbers are after one year? Their suffering and pain is unimaginable to those of us living in the comfort and security of our homes. But this post will attempt to bring home a sliver of the tragic reality for people with disabilities left behind in their war savaged country. 

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Many of Ukraine’s 2.7 million people with disabilities couldn’t flee from danger—those with high support needs; disabled children in orphanages; those without transportation, unable to cross the border on foot, and nowhere to go. They were left with insufficient caregivers or without help to navigate stairs in their high rise apartments.

The terror of war is compounded as lack of transportation to metro stations and inaccessible bomb shelters in underground subway stations strand many mobility impaired people in buildings being reduced to rubble and ashes by explosions and fires. People with vision or hearing impairments don’t receive information in accessible formats on emergency evacuation, shelter locations, and how to seek assistance. People with intellectual disabilities don’t respond to air raid warnings because they don’t understand they must get to a bomb shelter.

Necessary routine has been ripped from people with autism. The noise of shelling can cause seizures, screaming, or aggression in those with developmental disabilities. Speech, language and physical therapies are terminated. Education is disrupted for those unable to access online learning offered in mainstream schools. Access to medication and food is limited. Hundreds of hospitals have been destroyed, damaged, and have drastic shortages of staff and live-saving medical supplies.

Add to this the underserved needs of thousands of war wounded joining the disabled ranks. Amputees need surgeries and prosthetics. Spinal cord and burn injuries need specialized care and rehabilitation. Post-Traumatic Stress Disorder is rampant among war veterans, prisoners, and scarred civilians.

Although the human toll of Russia’s war is colossal, the international response is also gigantic. Weapons are not only being sent to help Ukraine win the war, but humanitarian resources help alleviate the suffering. For example,           

  • Samaritan’s Purse operates an emergency field hospital and has stationed scores of disaster response specialists in the region. 
  • Doctors Without Borders transports patients in a specially fitted medical train to  safer hospitals in the west.
  • Fight for Right arranges delivery of essential medications, financial support and legal advice for more than 4,100 individuals with disabilities.
  • The World Health Organization is replacing some Assistive Technology equipment.
  • Joni and Friends provides in-country support.
  • Revived Soldiers Ukraine brings wounded troops to America for specialized healthcare treatment.
  • I’m adding my name here. How about you? Stopping the war is beyond our control, but we can pray for God’s intervention and show compassion with donations to our preferred humanitarian organization.

“and if you spend yourselves in behalf of the hungry
    and satisfy the needs of the oppressed,
then your light will rise in the darkness,
    and your night will become like the noonday.”

Isaiah 58:10 (New International Version)

Image credit: https://pixabay.com/photos/map-ukraine-help-hearts-7106584/

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Categories
Medical

Sleep Your Way to Better Health

Sleep Apnea

Many Americans bemoaned losing an hour of sleep when Daylight Saving Time began on March 12. So Sleep Awareness Week, March 12-18, is timed to encourage us to prioritize sleep to improve overall health and promote the prevention and management of sleep disorders. According to the National Institutes of Health, sleep is as important for good health as diet and exercise.

Twenty percent of Americans have a sleep disorder with half having Obstructive Sleep Apnea (OSA). In OSA the repetitive pauses in breathing are caused by relaxation of soft tissue in the back of the throat that blocks the passage of air. Central Sleep Apnea (CSA) affects less than one percent of people and occurs when the brain doesn’t send the right signals to muscles that trigger breathing.

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Although 22 million people are estimated to have OSA, about 80 percent are undiagnosed. Their lack of oxygen comes with a high mortality risk. Sadly, I knew multiple little people who died in their 40s due to undiagnosed sleep apnea.

Until about 20 years ago, I too was undiagnosed. I didn’t know that my excessive daytime sleepiness put me at twice the risk of having a car accident. But I was jolted awake one afternoon after falling asleep at the wheel and my car veering off the road onto the grass. Thankfully, I didn’t hit a power pole or cross the center line into oncoming traffic and avoided being among the 100,000 auto crashes or 1,550 crash-related deaths the National Highway Traffic Safety Administration annually attributes to fatigue.

I had ignored sleep apnea symptoms like loud snoring, waking up with a dry mouth, and feeling as tired as when I went to bed. I forget if I had trouble remembering. Other symptoms didn’t bother me—insomnia, morning headaches, mood or behavior changes, and lack of energy. Other than being middle aged, common risk factors for sleep apnea were absent—allergies, drug use, family history, being a male, obesity, nasal blockages, large neck circumference, sleeping on my back, smoking, and enlarged tonsils or tongue. But failing to address my sleep apnea symptoms also put me at risk for life-threatening conditions like: diabetes; cardiovascular diseases; psychiatric comorbid diseases; cancer; neurological disorders; and brain damage.

Soon after my wake up call, I had a sleep study and was officially diagnosed with severe OSA. I slept overnight in a sleep clinic dotted with sensors that measured my sleep stages, breathing, muscle movement, and oxygen levels. I was prescribed a Continuous Positive Airway Pressure (CPAP) machine with a tube blowing pressurized air into a mask and through my airway to keep it open while I slept. 

Adjusting to the CPAP was challenging. However, I was determined to benefit from the health benefits of the device and refused to give up. With the help of a respiratory therapist, I chose a nasal pillow and comfortable headgear. The CPAP came with a compact carry bag making travel easy; airlines have made it a free carry on.

So how well are you sleeping?

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Categories
Accessibility International

International Wheelchair Day Celebration

International Wheelchair Day Celebration

For 15 years, celebrations of International Wheelchair Day on March 1 have occurred around the world, including in Australia, Nepal, Senegal, South Africa, Bangladesh, Pakistan, United Kingdom and America. It’s a celebration of the positive impact wheelchairs have in the lives of 5.5 million adult wheelchair users in the United States and more than 130 million  users worldwide. 

            One powerful purpose of the day is to change the mindset of those who perceive a wheelchair as a sad part of someone’s life. Because quite the opposite is true as shown in the following comments of wheelchair users:

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  • “The only sad part about this vital piece of equipment for me, is where we would be without it.” AJ’s Journey.
  • “I am so grateful for my wheels. They have enabled me to do so many things I couldn’t do without them. Pitying me for my chair use makes no sense.”  Hannah Ensor.
  • Without my wheelchair I wouldn’t be able to go anywhere or do anything. My wheelchair has given me independence, freedom, life.” Wheels2Walking.
  • My wheelchair is like another part of my body. I love my wheelchair. My wheelchair is called Freeda and she’s not something to pity.” The World of One Room.
  •  “I am not bound or confined to the chair, I am empowered by it.” Michele Lee
  • My wheelchair liberates me.” Becky
  • If you took my wheelchair off me I would be disabled! My wheelchair is like my best mate; it enables me to do so much and comes to so many places with me!” Claire Lomas MBE

Misconceptions about those who use wheelchairs are also busted:

  1. Users have various disabilities and are not all paralyzed; leg movement doesn’t make them a fake.
  2. Users may be able to stand or walk short distances and use wheelchairs because walking is exhausting, painful, slow, and the risk of falling makes walking hazardous.
  3. Users are not wheelchair bound or confined; they get out of their wheelchairs for activities like driving, exercising, swimming, sleeping, et al.

Many concede that using a wheelchair can be limiting, but attribute that to lack of access and public attitudes that suck. As Catarina Oliveira observed, “The barrier is not the wheelchair, but the world around the wheelchair”—sidewalks, curb cuts, ramps, bollards blocking accessible paths, and parking.

Considering that the first wheelchairs were developed in Europe in the 1100’s, were common in the 1700s and 1800s, and the 1932 Jenning’s folding wheelchair invention allowed users to roll outside their homes, what excuse is there for not developing an accessible infrastructure? Imagine if cars were mass produced without highways and bridges to drive on.  As Tara Moss opined, “if we made the world even half as accessible for wheelchairs as we have for cars, we’d make a far better world.”

Despite posting almost a week after International Wheelchair Day, it’s never too late to emulate the cause.  Just as every day is International Wheelchair Day forWheelTipsJoe, every day is a good day to take action to make the world a more accessible place for wheelchair users. 

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  • WheelTipsJoe (Joe Russel), https://www.facebook.com/joe.russel.921.