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Unparalleled Year of Us

Two Muffins
Image credit: Two Chocolate Chip Muffins from “Dinner with Julie.” https://www.dinnerwithjulie.com/wp-content/uploads/2013/03/Chocolate-chip-muffins-1-e1521489560475.jpg

UNIVERSAL themes of love for family and friends brought us together in Florida, United States (U.S.) and Sydney, Australia.

  • The wedding of Brittany and Stephen was a joyous assembly of family from around the U.S.
  • My 70th birthday trip to Sydney inspired a three-day, three generation reunion with my siblings, nieces and nephews followed by visits from my matron of honor 42 years earlier and girlfriend since kindergarten. Robert was not well enough to travel with me, so he stayed home in the care of three family members.

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  • Another three generation get together occurred in Stuart when my New Zealand (NZ) girlfriend of almost 60 years visited for the first time with her daughter and granddaughter.
  • More friend connections were made at Robert’s high school reunion and when hosting our annual Little People of America (LPA) Thanksgiving/Christmas gathering.

UNDERTAKING writing projects continued with uploading weekly blog posts; contributing a chapter to an anthology called “Dwarfism Arts and Advocacy: Creating Our Own Positive Identity;” and an LPA regional workshop on breaking down dwarfism stereotypes.

Several UNEXPECTED deaths of people from LPA, church, and family hit hard. The most shocking was the sudden loss of Ray Gedge. Ray dates back to high school days and became family when he married my aunt about 48 years ago. He also served as Robert’s groomsman in our NZ wedding in 1981. His passing is a solemn reminder that we have entered the last lap of our lives on this planet.

URGENT visits to emergency rooms involved both Robert and myself. A couple related to falls, but two were more serious. The day after testing positive for COVID, I was hospitalized for two days in a Sydney ICU after being brought back from the brink of death. A couple of months later, Robert was hospitalized for eight days as ICU staff in Stuart wrestled him back from multiple infections and stroke level blood pressure readings.

UNCOOPERATIVE is the best word for Robert’s attitude towards nebulizer treatments and exercise between physical therapy sessions. He agrees to do it, but his mastery of procrastination makes for many days without either one.

UNDERSTANDING how to motivate Robert remains elusive.

An UNCOMFORTABLE transition of Robert’s household maintenance chores involved me working with contractors to service, repair or replace pool and lawn sprinkler pumps, washing machine, air conditioner, waste disposal, and outdoor pressure washing.

An UNUSUAL wedding anniversary celebration involved two chocolate chip muffins picked up on my way home from having my blood drawn.

UPLIFTING events and routine activities preserved my sanity as a newbie caregiver. I enjoyed meals and fellowship at church meetings. Worship, Bible reading and study for teaching Sunday School underpinned my perseverance and prayer for patience.

USE of my gifts as church clerk and a board member for a charter school for autism contribute to being salt and light in the world.

The UNPREDICTABILITY of the future stops me from making specific New Year goals. I’m content to let the Lord direct my steps in accord with Proverbs 16:9.

You may also want to read:

For more of my writings, go to https://angelamuirvanetten.com where you can subscribe to my weekly blog and find retail links to my dwarfism memoir trilogy.

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Successful Authors Write and Talk

Podcast guest

Writing a book is not finished when you add the last word to the last chapter. Nope, you still need to respond to editor comments and choose a traditional or independent (indie) publishing path. And then there’s the massive undertaking of getting people to read the book. I say massive because each year three to four million new book titles publish and in today’s market the average book sells less than 300 print copies in the United States over its lifetime!

So how do authors get their books to stand out above the stack? It’s not enough to produce a well written manuscript lauded with top-notch reviews. Although quality

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writing is still an important ingredient for success, it doesn’t go very far without being paired with excellent marketing. And therein lies the rub. Publishers have shifted most book marketing to authors.

In order to sell my dwarfism memoir trilogy, I needed to be proficient in both writing and marketing. For me, it was a case of on-the-job training. I immersed myself in articles and webinars on publishing and greatly benefited from coaching by Ava Pennington, an author and teacher at writers’ conferences and faith-based and general market events.

As a result, my marketing strategy included: creating book launch teams; developing an author website—“a voice for people with dwarfism & disability,” https://angelamuirvanetten.com; writing a weekly blog post; being active on social media sites like Facebook, Twitter, and Pinterest; presenting workshops at LPA national and district conferences; and contributing articles and interviews to magazines and websites.

I also prepared media kits for each book with the goal of attracting podcast, radio or TV interviews; all of which involve talking. The listing of disability focused podcasts on which I have been featured are on my website at https://angelamuirvanetten.com/media/ and listed below:

  • Coach Ang and Samyuktha. “Author Spotlight: A Champion for Change,” Season 3, Episode 2. A Little Perspective. October 29, 2023. https://www.youtube.com/watch?v=g69a1m3ktEc
  • “How to Advocate for People with Disability and Dwarfism,” Season 4, Episode 27. Joni and Friends Ministry Podcast – November 10, 2022.
  • Betsy Fasbinder. “Angela Muir Van Etten: Always an Advocate.” The Morning Glory Project Podcast – January 19, 2022.
  • “Always an Advocate,” Episode 32. Florida Disability Rights, You First Podcast – November 18, 2021.
  • “Marriage Story: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith,” Season 2, Episode 37. Joni and Friends Ministry Podcast – October 22, 2020.
  • “A Voice for People with Dwarfism and Disability,” Season 2, Episode 36. Joni and Friends Ministry Podcast – October 15, 2020.

Please contact me at angela@angelamuirvanetten.com if you’d like to schedule an interview, speaking engagement, or guest blog post.

You may also want to read:

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2022 Year in Review: Now and Then

looking back

January. A positive interview on The Morning Glory Project podcast, helped market book three in my dwarfism trilogy, “Always an Advocate.” This was in stark contrast to a 1990 interview with a radio shock-jock who ridiculed little people.

February. The message in my 40th Valentine’s card from Robert—I’m a lucky husband and better man for having your love in my life—generated smiles instead of tears when he had no card to give his bride in 1982.

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March. The release of “Always an Advocate” Audiobook generated favorable reviews by listeners with vision impairments. In contrast, John Stossel’s “Give Me a Break” ABC TV segment on dwarf tossing 20 years earlier earned my negative review.

April. Our LPA trip to Lion Country Safari in Palm Beach, Florida was reminiscent of our 1984 trip to an African Lion Safari in Canada minus the need for directions from a farmer who laughed at the idea of lions roaming the landscape.

May. A garage worker totaled my car when his foot got caught on the accelerator! Twenty-two years earlier, a truck driver totaled Robert’s van when the thin metal edge of the flatbed sliced open the passenger’s side like a can.

June. My blog post, “Give Blood, Give Life,” highlighted the difficult blood draw process for many little people and need for donated blood during elective surgeries. Many years earlier, Robert was disqualified from a Hepatitis C research study because staff were unable to draw his blood.

July. Although I chaffed at the $100 surcharge it cost to ride in an accessible taxi with my scooter from the Spokane, Washington airport to the LPA conference hotel, this was better than being denied taxi service at the Denver LPA conference five years earlier.

August. An involved debridement appointment with my dental hygienist was a solemn reminder of the day nine years earlier when I needed a thorough debridement and teeth cleaning before the periodontist would write a letter clearing me for aortic valve replacement surgery.

September. After 18 weeks without wheels, we bought a 2020 Toyota Sienna Wheelchair Accessible Van equipped with pedal extensions, a power adjustable height driver seat, and steering wheel extension. It was a far cry from the Austin Mini car my parents gave me on my 18th birthday.

October. The “Ten Steps to Effective Advocacy” workshop I presented at the Florida LPA regional in Gainesville, Florida reminded me of the many advocacy workshops I presented as far back as 1986 to people with dwarfism and disabilities, parents of special education students, and disability professionals.

November. My interview on the Joni and Friends Ministry Podcast to discuss advocacy to change discrimination against people with dwarfism and other disabilities was a perfect follow-up to the two 2020 podcasts the ministry recorded after publication of “Pass Me Your Shoes.”

December. On December 29, 1999 a newspaper called the dwarf tossing atrocity one of the ten worst inventions of the millennium. My June 27th blog post, “Florida Bans Dwarf Tossing in Bars,” explains why the June 28, 1989 law was needed. For more book, blog, and media information, go to my website at https://angelamuirvanetten.com

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Just Call Me A Ding-a-Ling

Communication

You might think I lost my mind choosing to celebrate National Ding-a-Ling Day on December 12th. After all ding-a-lings are people considered nitwits or kooks. But no, in this case, the ding-a-ling is a throw-back reference to the sound of bells heard when the phone rang or the phrase “ring a bell” when reminded of something important or familiar.

Ding-a-Ling Day reminds us of the importance of staying connected with friends and family and encourages people to pick up the phone and call someone they haven’t spoken to in a while. It’s a day to curb our tendency to lose touch with people when we change schedules, schools, jobs or relocate to another city.

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In our 40 years of marriage we have racked up all of these changes, including relocations from Virginia to Maryland to Ohio to New York to Florida. As a result, we have lost touch with many people we care about.

But a phone call can change all that. Hearing the voice of a friend or family member is the next best thing to being together. We can close the gap of distance by sharing our news, laughter or tears, and concern for one another. Mood can be detected. Miscommunications can be straightened out.

This year, Ding-a-Ling Day rang a loud bell with me . I had deep-seated regret for being so disconnected from a friend in Little People of America (LPA) that I didn’t even know she was in a losing battle with cancer until she was in Hospice care! I had taken the relationship for granted and presumed we would catch up the next time I saw her at an LPA conference. If only I had picked up the phone now and then.

Even though December 12th has passed this year, it’s never too late to call someone. And we don’t need to limit ourselves to calling once a year. Why not pick up the phone whenever we’re thinking of someone? Call someone today. As the saying goes, “yesterday is gone, today is almost over, and tomorrow isn’t promised.”

Be a ding-a-ling in the life of someone you care about.

#National Ding-a-Ling-Day

BOOK NEWS: The first book in my dwarfism trilogy, “Dwarfs Don’t Live in Doll Houses,” is now available as an e-book on Kindle. Read the portion of my memoir from birth through my twenties. See my development in family, school, work, and public life. Download it on Amazon.com.

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STRESS MANAGEMENT: Moving the Business Out of Our Home

Let’s not stress about being five days late for National Stress Awareness Day on November 3rd. Today is as good a day as any to identify and reduce the stress factors in our lives. After all, stress management is critical for maintaining physical and mental health and protecting relationships.

Ten years into our marriage, Robert’s business—Adaptive Living—had become a huge stressor on our relationship. For six years he operated out of a home office where he worked day and night. Finally in November 1991, he saw the light of day when he moved out of his basement office into a commercial office building in the Erie Canal district of Rochester, New York.

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Robert saw a future in buying the property because it was close to downtown Rochester and Kodak’s world headquarters. The purchase was only possible because God graciously answered our prayers by providing as follows:

  • The Small Business Administration (SBA) loan program was funded the year of Robert’s application to buy a commercial building.
  • Robert was the first Rochester business owner in two years to qualify for the SBA loan for people with disabilities.
  • The SBA commercial loan interest rate was 3% compared to bank rates of 16% and the SBA mortgage term was 20 years compared to bank terms of 10-15 years.
  • Robert was approved at an affordable price for the life insurance policy required by the SBA; this had been a concern due to Robert’s dwarfism and lack of data on life expectancy for those with his type of dwarfism, Spondyloepiphyseal dysplasia.
  • Renovation funds were part of the SBA loan and matched by a City of Rochester community-development grant allowing for much needed building improvements.
  • The city cleaned up neighborhood debris, demolished a derelict building, and added a fence behind the property.

All was well until I learned that the SBA loan required me to sign as guarantor and use our home as collateral. I was distraught. If the business failed, my salary could not cover two mortgages and we could lose both the business and our house. For me it was a deal breaker. For Robert, not to do so was a marriage breaker. Amidst my tears and protest, Robert promised me that if the business could not pay, he would get another job to pay the loan. And so, I signed the loan papers with extreme reluctance.

The intent of moving the business was not only for Adaptive Living to grow and be physically more accessible to clients, but also for Robert to be more accessible to me.

So did the business move reduce our stress as planned? Find out by reading the rest of the story in “Pass Me Your Shoes,” chapter 12, Seeing the Light of Day, pages 83-84.

BARGAIN HUNTER’S ALERT: the “Pass Me Your Shoes paperback is discounted below the cost of printing and a Kindle edition is now available.

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NATIONAL AUTHOR’S DAY

Always An Advocate

November 1st is National Author’s Day and a great finish to the October 2021 book launch of “Always an Advocate” during Dwarfism Awareness Month. Thank you to those who liked, commented, or shared my Facebook posts. But with over 650 million books going into circulation last year, the only way to make a splash in the publishing pond is for readers to take the next step and go to Amazon to buy the book. A purchase is the best way to encourage an author.

According to markinblog, non-fiction is hugely popular right now and memoirs, biographies, romance, and suspenseful thrillers are the most popular genres in both print and digital editions. That’s good news for the many LP authors who are in the hunt for readers of their nonfiction memoirs.

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My first draft of this post included a listing and brief description of LP books dating back to 1988. However, there are just too many to list! Altogether I counted 18 authors with dwarfism who have written a memoir. I was surprised to discover I only knew about half of them. So stay tuned for a resource update on my website, angelamuirvanetten.

Although the memoirs all share the challenges we face as little people, the stories are as diverse as the people telling them. The authors are male or female; single, married, divorced, or widowed; different dwarfism types; with and without children; black or white; gay or straight, spiritual or not. They are employed or self-employed as coaches, dancers, doctors, entertainers, entrepreneurs, lawyers, leaders, musicians, professional wrestlers, public speakers, or teachers.

Many people tell me they want to write a book. And that’s great for the readers who are always looking for another great read. But before you venture into this world, be sure you’re ready for the ride. It’s not just a matter of sitting down at the computer for a few weeks and uploading a manuscript. Nope, before the writing comes the planning and after the writing there is editing, more editing, and proof reading. Then comes the decisions whether to seek an agent, publish traditionally or independently, or both.

It used to be that if you landed a publisher your work was done and your future as an author was bright. Not so anymore. Let me introduce you to a new “m” word. Marketing. Although not an offensive word, for those who love to write, marketing can cause great consternation. Both Indie and traditionally published authors must market their books. For example, an active social media presence on multiple platforms is essential. This is time consuming, self-promotion can be uncomfortable, and the shifting sands of social media make marketing outcomes unpredictable.

None of this is said to discourage you. If you want to write a book, “go for it.” But know what you’re in for. Start building your social media platforms now. Sign up for webinars to learn about the trade. And write, write, write. Authors are needed to educate, encourage, and entertain.

For more information on my dwarfism trilogy, blog, media, resources, and photos, go to my website at https://angelamuirvanetten.com.

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YOU’RE INVITED: Apply for Book Launch Team Membership

Application Form
Image by Gerd Altmann from Pixabay

Be on the team that launches—ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities—a book documenting radical changes in organization, respect, and equal access for thousands of people with dwarfism and disabilities.

Find out  (1) what it takes to lead a charity that changes lives; (2) how laws were passed to stop a morally bankrupt practice; and (3) who knocked down barriers to equal access in buildings and facilities, public transit, schools, and so many more?

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As a book launch team member, share the answers found in the third book of my trilogy and show how positive changes are possible in our chaotic world.

Apply now and through April 29, the day wrecking cranes began tearing down the Berlin Wall at the Brandenburg Gate in 1990. Be active in the disability movement that continues to break down environmental, attitudinal and system barriers.

Consider the benefits of being a team member:

  • Receive a complimentary autographed copy of Always An Advocate.
  • Exclusive, private, and direct communication with me as the Author and other team members.
  • FUN! Contests with prizes reserved for book launch team members!

Never been on a book launch team before? No worries. If you agree to do the following, you can do it:

  • Subscribe to my weekly blog (if not already a subscriber).
  • Accept Angela’s invitation to join the book launch team’s secret FaceBook group.
  • Agree to visit the team’s group at least once a week to support book marketing.
  • Read a pdf copy of the book prior to the release date. 
  • Post a favorable book review on amazon.com when requested by Angela at the beginning of the book launch month. (If you can’t recommend it to others, no hard feelings, but please agree not to post a negative review.)
  • Share book news on your social media platforms; consider posting a selfie reading the book.
  •  Share your enthusiasm for the book with your LPA chapter, district and any disability organizations that you belong to.

Other book launch team contributions include, but are not limited to, the following:

  • Recommend Always An Advocate to family, friends, coworkers and anyone else who will listen.
  • Post a favorable online book review on retail outlets where books are sold, such as Barnes and Noble and Books A Million.
  • Post a favorable book review on Goodreads.
  • If you have a blog, post a book review or interview with Angela.
  • Ask your local library to order copies of Always An Advocate.
  • Gift a copy to family and friends.
  • If you belong to a book club, suggest they read Always An Advocate.
  • Write and submit a book review for your local paper.
  • Anything else the team recommends.

To apply for membership on this book launch team, please text me at 772-834-3951 or private message me on FaceBook with your email address and I’ll send you the link to my website where you’ll find the simple, one page application form. Remember to submit your application on or before April 29th.

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“Pass Me Your Shoes” Book Launches in Dwarfism Awareness Month (DAM)

Pass Me Your Shoes

Thirty-two years have passed since I published Dwarfs Don’t Live in Doll Houses covering my years as a single person.  Now the sequel—PASS ME YOUR SHOES: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith—has released during DAM in October 2020.

Find out what happens when our marriage is complicated by dwarfism, different cultures and careers, dishonesty, discord, and discrimination. No-one skates through life without suffering some kind of hardship— abuse, betrayal, cancer, divorce, environmental, financial, grief, health, and so it goes through the alphabet.

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As a result, people reading this book whether or not they have dwarfism, another disability, or know someone with a disabling condition will—

—relate our challenges to their own.

—experience many emotions, including: (1) joy and laughter in our love story and humorous adventures, (2) fury and frustration for frequent accounts of discrimination; and (3) empathy for relationship struggles and surgeries.

—be encouraged to persevere in tough circumstances.

—aspire to the grit and tenacity we found to succeed in life and love.

—be warned that poor decisions can lead to lasting and painful consequences.

—learn how to live every day with hope and confidence in God’s strength, love, and mercy in all circumstances.

For several years we moved from state to state looking for job stability and a place to put down roots. Our common height of three-feet-four-inches was not a common interest that could hold the marriage together. Yet, through it all, God provided new opportunities, kept us together, and close to loving family and friends.

Whether our hardships are the same or different, all can respond to the message of hope and love we offer in Pass Me Your Shoes. For us, the key was in looking to the LORD God as our strength, rock, deliverer, refuge, support and salvation. You cleared the ground under me so my footing was firm. ∞ Psalm 18:36 (the Message).

Need more persuasion that this book is a good read? Here’s a sampling of endorsements: 

  • “This book provides a thoughtful contribution to the literature of dwarfism.” Carol Wintercorn, Retired Librarian
  • “I pray that . . . anyone who is daunted by a tough circumstance will find inspiration to pursue their dream.” Lee Fielder, former Pastor of Tropical Farms Baptist Church, Stuart, Florida
  • “With great frankness, Angela relates the challenges and triumphs she has faced in marriage, family, health and career. Along the way, we learn profound lessons from her great humor, strong faith and abiding love.” Diane Tomasik, Retired Journalist and Communications Professional

Please also read the five star customer reviews at Amazon.com and order your copy of Pass Me Your Shoes during DAM. The book is also available at

Barnes and Noble, https://www.barnesandnoble.com/w/pass-me-your-shoes-angela-muir-van-etten/1137737056?ean=9780998464862 and

Books a Million, https://www.booksamillion.com/p/Pass-Your-Shoes/Angela-Muir-Van-Etten/9780998464862?id=7948378273836

For information “About the Author” go to my website at https://angelamuirvanetten.com/about/

Enter Contest to Win
(open from October 5 to November 14 midnight)

Post, tag me, and share on social media a selfie holding or reading your copy of Pass Me Your Shoes. The first 100 people to also email a copy of your selfie to angela@angelamuirvanetten.com will receive a free Dwarfism Awareness Month wrist band and an autographed bookplate to paste in your book.