Categories
Dignity

Florida Bans Dwarf Tossing in Bars

Image by BedexpStock from Pixabay

In 1989, barroom spectacles masqueraded as “sport” when Florida patrons competed for prize money awarded to whoever threw a dwarf the farthest or knocked down the most pins with a dwarf. A willing dwarf served as a human Frisbee when tossed into the air or a bowling ball when strapped onto a skateboard.

I learned about this traveling road show from Little People of America (LPA) advocates in Florida. They called me at my New York residence after reading the dwarf-tossing chapter in my 1988 book, Dwarfs Don’t Live in Doll Houses. My words—“When negotiation and advocacy don’t prompt an appropriate response, legislation will be the only means to avert the action”—had proved prophetic in Florida.

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The Florida dwarf-tossing contests had thrived on negative publicity for a whole year. Any moves to shut down the contests failed because the promoters took the show on the road before local municipalities could prohibit the practice. Consequently, I agreed that a statewide law to make the offensive activity unlawful was needed.

Florida advocates succeeded in getting state lawmakers in both the house and senate to introduce a bill to ban dwarf tossing in licensed establishments. Although I had a minimal role in getting the Florida bill passed, I helped gain public support by joining Florida advocates as a guest on the Sally Jessy Raphael Show. One of the points I made was that dwarf tossing affects all people with dwarfism because it endorses society’s decision to strip dwarfs of their personhood and subject them to unequal treatment as freak show entertainment and objects of ridicule.

Dr. Cheryl Reid, a member of the LPA Medical Advisory Board, addressed the danger of dwarf tossing. She used an anatomical model to show that the spinal cord of dwarfs with achondroplasia—the most common type of dwarfism—has less room to move through the spinal column and is more likely to be kinked or bent possibly causing sudden paralysis or death. Support for her opinion came from quotes Sally read from other dwarfism doctors at nationally renowned medical centers.

Further medical evidence showed that there was no way to make dwarf tossing safe. Dr. Aldo F. Berti, Clinical Assistant Professor of Neurological Surgery at the University of Miami School of Medicine, wrote, “I do not believe any safety equipment used by the volunteer dwarves in their chosen risky business serves as significant protection since it does not give any stability to their weak musculoskeletal complexion.”

Contrary to the predictions of Florida dwarf-tossing promoters, the Florida bill became law on June 28, 1989!

According to Nancy Mayeux, the mother of two girls with dwarfism, the legislature found that dwarf tossing

  1. is morally wrong;
  2. creates discrimination against dwarfs;
  3. is a potential financial burden to the State when inevitable injury occurs to the uninsurable dwarf who is tossed;
  4. infringes on the rights of, and endangers, other dwarfs in the community threatened by tossing against their will; and
  5. is an embarrassment to the State.

This post is excerpted from Part II, The Rise and Fall of Dwarf Tossing, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities” available on Amazon in print, e-book, and audio formats. Read more at https://angelamuirvanetten.com/always-an-advocate/.

Amazon book review excerpts re dwarf tossing:

“Perhaps the most inspiring section is the campaign run by Little People of America to ban ‘dwarf tossing’ in bars in Florida and New York. Angela was very much involved in this campaign, her legal background proving a major asset in getting this supposed ‘sport’ banned.” Geoff Ryan

“For me, the most thought provoking and interesting part two, the rise and fall of dwarf tossing. Angela documents her tireless efforts to ban the sport in numerous US states [and] provides an easy read legal debate regarding the so-called form of entertainment. It is interesting to see how Angela, and others, had to find persuasive arguments to ban something that should never exist in the first place.” Dr. Erin Pritchard

“It is hard to believe that Dwarf Tossing was considered a sport. As an orthopedic surgeon, the life changing damage to the body is unimaginable and possibly permanent.” James Farmer, M.D. “Angela and others battled the despicable and potentially deadly “sport” of dwarf tossing.” Eileen Healy

Categories
FAQs Transportation

Can You Drive?

Steps for car

Years ago, I totally shocked a supposedly educated man who refused to believe I could drive a car at my height of 40 inches. He only accepted it after someone told him I had given him a ride home. It was just as hard for me to believe that anyone could be so amazed. Yet he is not the only person I have surprised.

One afternoon, I parked beside a curb leaving plenty of room between the car in front and behind. When I got out, an onlooker was so impressed he extended his hand in congratulations. It wasn’t in sarcastic relief that I hadn’t bumped his car parked behind me. That wasn’t his car. No, he just didn’t know little people could drive and thought the feat was marvelous.

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All I needed were pedal extensions, seat cushions, the seat moved forward, a smaller steering wheel, and automatic drive. The seat cushions raised me higher in the seat and a smaller wheel eliminated the need to pancake my legs between the wheel and the seat. I also appreciated the better grip and control a smaller wheel provided. Fatigue and discomfort were avoided by building a footrest platform. This removed the risk of the driving-foot falling asleep or any delay in reaction time. The platform also took away any temptation to rest my non-driving foot on the brake.

Fast forward 50 years!

Age has caught up with my husband, me, and our 2004 Mazda 6 wagon. We both use scooters for distance walking, a scooter lift to position them in the trunk, and the Mazda has clocked over 100,000 miles. We drove the Mazda for 18 years because we could not find a wagon that fit two scooters and was low enough to the ground for us to get in without a struggle.

Our long-term plan was to replace the Mazda with a Wheelchair Accessible Van (WAV), but the plan was expedited when I took the Mazda in for service. A garage worker got his foot caught on the left-foot accelerator and totaled it! This catapulted us into the market for a WAV that we can board by driving our scooters up a ramp or onto a lift.

The answer to the can you drive? question remains the same, yes. But how I accomplish this has changed dramatically. In my driving assessment this week, a Certified Driving Rehabilitation Specialist rejected the pedal extension and seat cushion adaptations as unsafe. Instead she recommended hand controls and customizing the power seat that raises me to see out the window to also provide back support. The smaller steering wheel is still an option, but this will involve serious dollars to relocate all the controls on the wheel.

The technology that makes driving a WAV possible is amazing, but buying one for more than the cost of our first home is shocking!

So now it’s my turn to ask a question. Will I be successful in purchasing a WAV without breaking the bank? Stay tuned for the answer. This post includes excerpts from Chapter 7, ‘Doing Things Differently,’ in Dwarfs Don’t Live in Doll Houses. Read more at https://angelamuirvanetten.com/dwarfs-dont-live-in-doll-houses/

Categories
Medical

GIVE BLOOD, GIVE LIFE

blood
Image by mohamed Hassan from Pixabay

In the United States, someone needs blood every two seconds. Because blood cannot be manufactured artificially and has a limited shelf life, meeting this need involves about 38,000 donors per day and 6.8 million per year.

One in seven people entering a hospital need blood. Typically these are patients undergoing advanced medical and surgical procedures as a result of (1) traumatic injuries, emergencies, disasters and accidents, (2) dwarfism, or (3) diseases like cancer, aplastic anemia, hemophilia, and Sickle cell.

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Donating blood is a simple procedure that can be done within an hour. But supply often doesn’t meet demand because restrictions reduce the number of people able to give blood. For example, people with Ebola, Leukemia, and HIV or AIDs are permanently precluded from donating. Some donor restrictions are temporary and will be lifted after a prescribed period of time, such as when flu symptoms pass, a course of medication is completed, or iron levels have increased.

Even though little people weighing under 110 pounds don’t qualify to make blood bank donations, gaining weight is not recommended to make this a temporary condition. Some people with dwarfism may meet the weight requirement, but the blood draw process is often painful and unproductive due to inability to straighten the arm at the elbow and difficulty finding a vein.

Despite the restrictions, the donor pool is plentiful with 37% of Americans eligible to donate blood. But sadly, only about 5% actually donate. One way to combat this shortage is for individuals in good health to donate blood for their own use. Self-donations also reduce the risk of incompatibility or infection.

Self-donations are common for people planning elective surgery. Many little people persevere with the difficult blood draw process and self-donate for orthopedic and neurologic surgeries. The eligibility criteria is less restrictive and even allows donor weight to be as low as 90 pounds. My husband Robert successfully self-donated two units of blood for his left hip replacement surgery. The blood was drawn a few weeks before the surgery, labeled with his name, and transported the 250 miles from Rochester, New York to Cleveland, Ohio.

When Robert was unable to self-donate for his right hip-replacement surgery, he elected a directed donation. This meant he recruited family members to donate blood that were earmarked for his use. Just as well, because the day after surgery he needed another pint of blood. But he would not let the nurse begin the transfusion until she confirmed that his cousin Tommy’s name was on the bag as the directed donor. Likewise, Monica donated blood for her son’s brain stem surgery. And during Susie’s laminectomy surgery, staff got her mother from the waiting room to quickly donate a pint.

So on Tuesday, June 14th, World Blood Donor Day, consider doing one or more of the following:

  • Wear red.
  • Encourage existing donors to continue giving blood.
  • Recruit new donors.
  • Volunteer at a blood drive.
  • Share a story expressing gratitude for blood donors who have saved your life.

This post includes references to the second book in my dwarfism memoir trilogy, “Pass Me Your Shoes: A Couple with Dwarfism Navigate Life’s Detours with Love and Faith.” Read more at https://angelamuirvanetten.com/pass-me-your-shoes/

Categories
FAQs

Can I Help You?

Ask

Independent living by people with disabilities does not equate with never needing help. But it does mean help should not be imposed against a person’s will.

Can I help you? is a fair question to ask someone with a disability. But it’s not okay to rush in with the help you think is needed and thereby create a problem. Overzealous helpers can do a lot of harm! Parents know this well. Some have sent their dwarf child to school independent in toileting and shoelaces. They become exasperated when a teacher undermines independence by carrying the child to the toilet and tying their shoelaces.

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Adults with disabilities are similarly challenged by rogue helpers. Take for example when I pull into a parking space. They right away step up and open the driver’s door. Sounds like the chivalrous thing to do, right? However, it’s the opposite of what I need. I have to ask them to give my door back so I can lean on the armrest to lower myself to the ground. Likewise, it’s not okay for a public restroom attendant to use the master key to burst into my cubicle intent on providing assistance!

So instead of barreling in with unwanted aid, make an offer and wait for the person with a disability to accept or refuse. Typically, I’ll decline help when it’s something I can do myself. For example, people frequently offer to get my mobility scooter in or out of the car. But I say no thanks, because a lift raises and lowers the scooter from the trunk to the ground. Besides, if I let helpers manually lift the scooter in, it would be disconnected from the lift and I would be unable to get the scooter out of the car.

I’m willing to accept or ask for help, but only when the task is beyond my ability and to refuse means I’ll miss out on something I want to do or need to happen. Several cases come to mind: as a teenager I let my father carry me up and down stairs in a glow worm cave; in high school, I allowed class mates to carry me on a trek across farm hills to a beach party; after travelling thousands of miles from New Zealand to Malaysia, I accepted a helping hand up long flights of stairs with no handrails to enjoy hilltop scenery, and agreed to be lifted onto a chair to reach a laser machine for eye surgery.

Other situations that cause me to ask for, or accept, help include: reaching something on a high shelf; changing a flat tire; and breaking through unexpected access barriers, such as a driveway being blocked by a wall of snow created by a snow plow and an out-of-service elevator.

One final thing. If a person with a disability accepts or asks for help, it’s critical to wait for and follow instructions. Doing it wrong can inflict pain or injury. And no one needs a helper that makes a situation worse.

For more of my writing, subscribe to my weekly blog and find links to my dwarfism memoir trilogy at https://angelamuirvanetten.com.