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Accessibility

Fed Up With FedEx

FedEx delivery

Normally I would be excited to see a delivery at my door within two days of the order—especially knowing that this delivery was my mobility scooter. But when I turned into the driveway and saw the scooter box in front of the garage door, I was extremely aggravated. There was no way my weight of 73 pounds could budge the 100 pound box, let alone move it out of the way!

Common sense should have told the driver that blocking entry to the garage was a really bad idea. In anticipation of this nonsensical package drop, I had tried to use the shipment tracking number to avoid this outcome. It didn’t work. Even so, I was grateful the package did not trap me inside the garage and prevent me from taking Robert to his kidney dialysis appointment.

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I called the FedEx customer service toll free line to ask for a driver to come and move the package. However, the computerized menu did not have a pick for packages already delivered. After listening to the menu a few times, the closest choice was “something else.” Finally, the computer transferred me to a live person!

Although the customer service representative (CSR) was polite and apologetic, his approach fell far short of any solution. He used the tracking number to identify the station that delivered the package and sent them a message asking for a driver to come and move it. But he refused to give me a direct contact number or email address I could use to follow up with the station in the event nothing happened. At least I pried out of him the street address of the station that delivered the package.

When the package sat in front of my garage for another eight hours, I used this address to locate a direct phone number to speak with a CSR at the station where the package came from. The CSR claimed to have no knowledge of the message sent by the toll free CSR earlier in the day. His action was to call the owner of the station closest to where I live and get his commitment to send a driver to move the package first thing in the morning. This CSR also refused to share the name or phone number of the local station, thus depriving me of direct follow up if the package was not moved in the morning.

So what did I see when I looked first thing the next morning? The scooter package still sitting in front of the garage door! Once again FedEx failed to follow through. So I called a friend who works at FedEx and she located a driver willing to come and move the package. And I’m sure he would have come, but a cousin came by about the same time and offered to not only move the package, but also to assemble the scooter. Naturally, I accepted his offer and cancelled the service offer of my friend’s contact.

Have you fared any better getting a delivery company to correct their mistakes?

For more of Angela’s writings, please visit her website for links to her books, blog, and media at https://angelamuirvanetten.com.

Categories
Accessibility

Are We There Yet?

Subway
stairs down to New York City subway

The impatient query of children traveling in the back seat of a car—Are We There Yet?—can just as easily be applied to Americans with Disabilities Act (ADA) compliance. Thirty-two years after the January 26, 1992 ADA effective date, the answer is “no, we are not there yet.” Violations abound.

1. Sidewalks and Curb Ramps

The lack of a good sidewalk network still deprives wheelchair users with mobility impairments from using public transportation due to access barriers between home and transit stops and from transit stops to their destination. In recent years, multiple locations across America provide a fraction of the curb ramps required by federal law—Atlanta (30%); Baltimore (1.3%); Oregon (9%); and Boston (less than 50%). Los Angeles estimated it would cost $1.4 billion and take 30 years to comply.

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2. Trains

Train systems built before the ADA are not wheelchair accessible and, according to the Federal Transit Administration, about 20% of transit stations nationwide still do not have elevators or ramps. For example, only about 25% of New York City subway trains are served by elevators and these are frequently broken. And despite an historic settlement with the Metropolitan Transit Authority on April 24, 2023, it will take until 2055 for at least 95% of train stations to be made accessible with elevators and ramps.

3. Taxis

A family of three people with disabilities traveling with two power scooters, a bunch of stools and suitcases tell how hard it was to get a taxi from a public transportation terminal to a hotel. Upon placing calls to cab companies that advertised service to disabled people, the first two companies denied service and hung up on them. A third company declined saying they don’t pick up from the airport and only transport people to and from doctor appointments. It took “sweet talk” and a private pay fare of $75 to convince the company to accept the ride. Sadly, this experience is more the rule than the exception not only for this family, but for many others with disabilities.

4. Hotels

After reserving an accessible hotel room, there’s no guarantee it will still be available when the disabled guest arrives at the hotel or if the room will even be accessible. In 2022, the United States Department of Justice resolved two such cases:

  • In U.S. v. Hilton Worldwide, Inc. (HWI)—after ten year of litigation—a Consent Decree ordered HWI to institute a reservations policy for accessible guest rooms that will hold open two non-premium accessible guest rooms as the last rooms sold at each hotel.
  • In U.S. v. Badrivishal LLC (owner and operator of the Holiday Inn Express Hotel & Suites in Columbus, Ohio), the hotel must ensure that its rooms, including bathrooms, that are required and advertised as accessible to people who use wheelchairs are, in fact, accessible.

5. And so much more
What can you add to the list of ADA violations that need to be addressed?

Photo Credit: Image by Foundry Co from Pixabay

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Accessibility

MEDICAL DIAGNOSTIC EQUIPMENT: Proposed for State and Local Government Entities

Radiology imaging
Female dwarf of 40 inches standing next to an examination table lowered to an accessible height of 16 inches.

Excitement was my response to the January 12 news that the United States Department of Justice (DOJ) has taken a major step towards revising its title II Americans with Disabilities Act (ADA) regulations governing State and Local Government Entities (28 CFR part 35) to add Medical Diagnostic Equipment (“MDE”)—examination tables, examination chairs (including chairs used for eye examinations or procedures, and dental examinations or procedures), weight scales, mammography equipment, x-ray machines, and other radiological equipment commonly used for diagnostic purposes by health professionals. The purpose is to ensure that MDE used by 6,905 public entities offer individuals with disabilities accessible services, programs, and activities at hospitals and other health care facilities.

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Little People know all too well that without accessible MDE, individuals with disabilities are often denied an equal opportunity to receive medical care, including routine examinations. According to the DOJ, patients with disabilities have had to forgo Pap smears because they could not safely transfer from their wheelchairs to a fixed-height exam table. Similarly, inaccessible mammography machines have contributed to low breast cancer screening rates for patients with disabilities. But no example was given about the health consequences for people with dwarfism.

In a Section-by-Section Analysis of the proposed rule, the DOJ details the changes to the title II ADA regulations, including the reasoning behind the proposals, and poses questions for public comment. Powerful and easy to follow public comments should also reference the section or DOJ issue on which comments are based. Recommended changes should include data, information, or supporting authority. Please follow the link dated January 12 under Additional Resources at the end of this post to get details of proposed changes.

Now is a great time for people with dwarfism and Little People of America (LPA) to get on the DOJ’s radar, especially since they have called for public comment on this proposed rule change. Although many of the changes and issues directly impact public entities, it’s important to be on the lookout for changes that will adversely impact patients, especially little people.

The following are a few areas I have tagged for my comments:

  •     § 35.210 Requirements for Medical Diagnostic Equipment
  •     Several Issues on scoping
  •     Issues 6 to 8 on dispersion of accessible MDE
  •     Medical Equipment Used for Treatment, not Diagnostic, Purposes

You get the idea. Please read through the rule and pick areas on which you want to share your observations, approval, concerns, or whatever else comes to mind.

Somewhat surprising, is the DOJ only allowing 30 days for the submission of comments. This means we only have until February 12, 2024 to submit comments. Even though this tight turn around might limit how much you can say, please say enough to put the DOJ on notice to LPA issues.

Interested persons are invited to submit comments, identified by RIN 1190–AA78 in the subject field, by any one of the following methods:

• Federal eRulemaking website:https://www.regulations.gov. Follow the website’s instructions for submitting comments.

• Overnight, courier, or hand delivery: Disability Rights Section, Civil Rights Division, U.S. Department of Justice, 150 M St. NE, 9th Floor, Washington, DC 20002.

Please help to spread the word. The more public comments received the better.

Additional Resources:

Categories
Accessibility

Need Greater Equipment Access? Talk to the Manufacturer

Elevator access
Angela stands in front of an accessible elevator panel of floor buttons and inserts a hotel keycard to access the elevator floor selected. Her sister-in-law, Julie, stands next to her watching the wonder of independent access.

Fifty plus years ago I rarely used an elevator. I grew up in a single story house and there were no elevators at school. However, that all changed when I began university in 1971. The law library was on the fifth floor, lecture rooms were on the sixth, and the highest button I could reach was for the fourth floor. Even the open door button and emergency telephone were out of reach!

Ten years later, little people were still struggling to reach elevator buttons. Hotels hosting Little People of America (LPA) meetings would temporarily equip elevators with wands and stools. But this only worked if floor buttons didn’t require heat from a skin touch or the person was able to use a stool. And sadly, the accommodations were removed when the meeting was over.

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Ten years later, little people were still struggling to reach elevator buttons. Hotels hosting Little People of America (LPA) meetings would temporarily equip elevators with wands and stools. But this only worked if floor buttons didn’t require heat from a skin touch or the person was able to use a stool. And sadly, the accommodations were removed when the meeting was over.

So what could LPA do about out-of-reach elevator buttons? In the 1990s, when out-of-reach ATMs propelled LPA to advocate for lowering ATMs in the ICC/ANSI A117.1 Committee on Accessible and Usable Buildings and Facilities (ANSI Access Committee), we discovered that the reach range code section applied to everything open to the public activated with a push, pull or turn. Removing the six-inch reach barrier for ATMs would also bring elevator buttons within reach of at least a half million people with dwarfism, limited upper arm strength and movement, and other disabilities.

After vigorous debate in February 1996, the ANSI Access Committee agreed to LPA’s proposal to lower the unobstructed side reach from 54 to 48 inches in the second draft revision of the ANSI Access Code. Although the elevator industry was generally willing to meet the 48 inch standard, they sought an exception for buildings with more than 16 elevator stops. Without this exception, the industry would be boxed in between a 48 inch high side reach and a 15 inch low side reach needed to accommodate people who are blind; this left insufficient room for floor buttons in high rise buildings. The industry needed time to re-engineer the control panel.

LPA agreed not to fight the exception sought by the National Elevator Industry Institute (NEII) in the 1998 ICC/ANSI code given their commitment to form a Task Group to understand the access needs of little people and explore ways of providing 100% elevator access in the future. At the same time, LPA put the industry on notice that we would propose removal of this exception in the 2003 revision cycle.

After meeting with LPA representatives three times, NEII came up with a technology solution designed to enable little people to reach ANY floor destination. With technology comparable to setting the time on an alarm clock,people use an up or down scan button to select a floor destination. The LPA/NEII proposal was accepted at the May 2002 ANSI Access Committee meeting and appears in § 407.4.8, ICC/ANSI A117.1-2003.

Yet despite this technology breakthrough being added to the ANSI Access Code, I have yet to see this feature on any elevator. Please comment if you have seen a floor destination scan button in service? This post was based in part on excerpts from two books in my dwarfism trilogy memoir: ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities and Dwarfs Don’t Live in Doll Houses. Book details and buy links are found at https://angelamuirvanetten.com/books/.

Categories
Accessibility

The Long Road to Update Federal Reach Guidelines

Reach Us

People with disabilities celebrate National Disability Independence Day on July 26. And Little People of America (LPA) also celebrates July 23, 2004—the day the Access Board published a final reach range rule making public facilities more accessible to at least a half million people with dwarfism, limited upper arm strength and movement, and other disabilities.

The Access Board is an independent federal agency responsible for developing and maintaining accessibility guidelines for the construction and alteration of facilities covered by the ADA of 1990 and the Architectural Barriers Act (ABA) of 1968.

The ADA applies to places of public accommodation, commercial facilities, and State and local government facilities.

The ABA covers facilities designed, built, or altered with Federal funds or leased by Federal agencies.

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In 1994, the Access Board established an advisory committee to review and recommend changes to update the 1991 ADA Accessibility Guidelines (ADAAG). When LPA learned that the committee was tentative about recommending a reduction in the unobstructed side reach from 54 to 48 inches, Robert Van Etten and I drove almost 400 miles to a July 7, 1996 committee meeting. We fervently advocated for breaking the six-inch reach barrier. We were ecstatic when the Advisory Committee’s recommendation to the Access Board included a side reach of 48 inches!

It took another three years before the Access Board published a Notice of Proposed Rulemaking (NPRM) to jointly update and revise its ADA and ABA Accessibility Guidelines. I coordinated LPA’s advocacy in support of lowering the side-reach to 48 inches by encouraging LPA’s members, allies, and disability organizations to send comments to the federal Access Board.

Although the Access Board rejected the Advisory Committee’s 48-inch recommendation, I believe this flawed decision swayed several hundred to make comments favoring the six inch reduction. I prepared and submitted LPA’s official comments—a 25-page document that took more than 45 hours to prepare. During the NPRM comment period, LPA members also testified at public hearings in Los Angeles, California, and Arlington, Virginia.

After the public comment period closed, I represented LPA and recruited local LPA members to attend Access Board informational meetings on October 24-25, 2000, in Washington, DC. Their purpose was to determine the effect a 48-inch standard would have on manufactured equipment and newly constructed building elements. In a jaw-dropping moment, ATM manufacturers announced that their new generation of machines would meet the 48-inch standard! Our jubilance couldn’t even be dampened by the gas pump manufacturers’ continued fight for an exception.

Another four years passed before the final rule was published on July 23, 2004. Euphoria barely described the joy of finally seeing the 48-inch standard accepted in the new ADAAG. Federal law now mandated this accessible height for ATMs and everything open to the public activated with a push, pull or turn.

Yes it was disappointing to see gas pump manufacturers granted an exception for machines installed on existing curbs and allowed installation of operable parts on gas pumps as high as 54 inches. But victories are celebrated and disappointments motivate us to keep advocating for change.

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Accessibility

Therapeutic Gardening and Accessibility

garden

Gardening was part of my childhood experience: picking violets at grandmas and pansies at home, eating grapes off the vine at nanas and vegetables from grandad’s garden, and admiring my aunt’s azaleas. And those gardening seeds planted in childhood propagated when I was an adult, first with apartment house plants and then outdoor gardens as a home owner.

National Gardening Day on April 14th got me digging into the merits of gardening for people with disabilities. I was drawn to the aesthetics of indoor plants, but never thought about their role in removing air contaminants and increasing humidity in dry areas. I didn’t know plants lowered my stress and blood pressure and improved my mood. For example, my snake plant that relocated with me three times had apparently eliminated air pollutants, reduced tension, and promoted relaxation.

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I knew outdoor gardening supplemented my Vitamin D intake, but had no idea the sun lowers my risk of certain cancers and other maladies. The exercise involved saves me from a gym membership, promotes sleep, helps maintain a healthy weight, reduces stress, and improves cognitive skills.

In recent years, these advantages are recognized as therapeutic horticulture used in hospitals, rehabilitation centers, senior centers, schools, and prisons. Patients with catastrophic injuries are observed to heal faster when they access outdoor spaces with plants. British primary-care doctors often give patients a “social prescription” for gardening as an effective alternative to talk therapy or antidepressants.

However, in order for me to benefit from therapeutic gardening I need a garden that accommodates my inability to kneel, touch my toes, and stand for any length of time. When designing the garden next to our front door, some plants were kept in reach as a border next to the sidewalk and others adjacent to a circular pathway around the garden interior. Underground watering was linked to the lawn sprinkler. Weeding was reduced with mulch. Dead leaves and flowers on the begonias, bromeliads, and anthuriums were plucked with salad tongs. Debris was gathered in a throw away grocery bag. Gardening for the day stopped when the bag was full.

anthurium

For 22 years my tropical garden in our Florida climate thrived. But time has left its’ mark with a broken watering system, ups and downs in the soil level, and spreading plants almost eliminating my pathway. This year’s cold spell almost wiped out some plants and many dead leaves weren’t plucked given my lack of access.

My friend Susan helped me clean up the garden, but going forward accessible features are needed. As a retiree on a fixed income, I need affordable options that don’t involve starting from scratch. To avoid kneeling, bending down, and plants spreading into the walkway, I’m exploring easy watering like a seep hose for containers and a raised bed built to my height with plants that won’t grow out of reach. Hanging planters with a pulley system would be cool. Ergonomic light weight tools with a comfortable grip and long reach range are necessary.

What accessible gardening tips can you add?

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Accessibility International

International Wheelchair Day Celebration

International Wheelchair Day Celebration

For 15 years, celebrations of International Wheelchair Day on March 1 have occurred around the world, including in Australia, Nepal, Senegal, South Africa, Bangladesh, Pakistan, United Kingdom and America. It’s a celebration of the positive impact wheelchairs have in the lives of 5.5 million adult wheelchair users in the United States and more than 130 million  users worldwide. 

            One powerful purpose of the day is to change the mindset of those who perceive a wheelchair as a sad part of someone’s life. Because quite the opposite is true as shown in the following comments of wheelchair users:

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  • “The only sad part about this vital piece of equipment for me, is where we would be without it.” AJ’s Journey.
  • “I am so grateful for my wheels. They have enabled me to do so many things I couldn’t do without them. Pitying me for my chair use makes no sense.”  Hannah Ensor.
  • Without my wheelchair I wouldn’t be able to go anywhere or do anything. My wheelchair has given me independence, freedom, life.” Wheels2Walking.
  • My wheelchair is like another part of my body. I love my wheelchair. My wheelchair is called Freeda and she’s not something to pity.” The World of One Room.
  •  “I am not bound or confined to the chair, I am empowered by it.” Michele Lee
  • My wheelchair liberates me.” Becky
  • If you took my wheelchair off me I would be disabled! My wheelchair is like my best mate; it enables me to do so much and comes to so many places with me!” Claire Lomas MBE

Misconceptions about those who use wheelchairs are also busted:

  1. Users have various disabilities and are not all paralyzed; leg movement doesn’t make them a fake.
  2. Users may be able to stand or walk short distances and use wheelchairs because walking is exhausting, painful, slow, and the risk of falling makes walking hazardous.
  3. Users are not wheelchair bound or confined; they get out of their wheelchairs for activities like driving, exercising, swimming, sleeping, et al.

Many concede that using a wheelchair can be limiting, but attribute that to lack of access and public attitudes that suck. As Catarina Oliveira observed, “The barrier is not the wheelchair, but the world around the wheelchair”—sidewalks, curb cuts, ramps, bollards blocking accessible paths, and parking.

Considering that the first wheelchairs were developed in Europe in the 1100’s, were common in the 1700s and 1800s, and the 1932 Jenning’s folding wheelchair invention allowed users to roll outside their homes, what excuse is there for not developing an accessible infrastructure? Imagine if cars were mass produced without highways and bridges to drive on.  As Tara Moss opined, “if we made the world even half as accessible for wheelchairs as we have for cars, we’d make a far better world.”

Despite posting almost a week after International Wheelchair Day, it’s never too late to emulate the cause.  Just as every day is International Wheelchair Day forWheelTipsJoe, every day is a good day to take action to make the world a more accessible place for wheelchair users. 

You may also want to follow:

  • WheelTipsJoe (Joe Russel), https://www.facebook.com/joe.russel.921.
Categories
Accessibility

Defendants Feign Ignorance When Hit With ADA Complaints

Access Counter

According to an attorney who defends businesses charged with Americans with Disabilities Act (ADA) Title III violations, most defendants don’t know there’s a problem until served with a summons notifying them of the lawsuit. So 31 years after the ADA’s January 26, 1992 effective date, we’re expected to believe defendants don’t know wheelchairs can’t climb steps, people using walkers and canes have trouble opening heavy doors, and little people can’t reach high counters!” Incredulous. No, it’s way past time for defendants to cry foul when held accountable for access violations that exclude people with dwarfism and disabilities.

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Thankfully the United States Department of Justice (DOJ) ADA enforcement actions demonstrate ignorance is no excuse. For example, in 2017, the DOJ entered voluntary compliance agreements with two Iowa restaurants to resolve designated accessible parking space issues. At Cedar Grill, the spaces were not located on the shortest accessible route to the main entrance. At Birdsall Ice Cream Co., the stripes were worn and did not effectively define the van accessible parking space and adjacent access aisle. 

Doors are another bone of contention for people whose disability limits their ability to push or pull. Heavy doors can effectively block people from entering a building or getting out of a public bathroom. For example, when my husband Robert did not return from using the bathroom at a COVID-19 testing site, I asked a paramedic on duty to go and check if he was okay. Sure enough he was trapped by a heavy door. Likewise, the closer on the Cedar Grill restaurant bathroom door at 7 lbs force was heavier than the maximum allowable force of 5 lbs.

It may surprise you to know that many people with dwarfism choose a restaurant based on furniture. As Deb Hecht, a little person from Indiana, said:

“Look at ALL the bar stools instead of regular dining room chairs. I am now very selective in my restaurant choices because of the height of the chair, not the food choice!

Although food is important, it’s irrelevant if you can’t sit comfortably while eating it.

As it turns out, inaccessible seating is not something little people have to accept. The DOJ called out the two Iowa restaurants, named above, on this very issue. Both were required to remove architectural barriers—like fixed bar stools—that failed to provide accessible dining surfaces. At least five percent of the seating or standing spaces at dining surfaces must provide a dining surface 28 inches minimum and 34 inches maximum above the finished floor. 

Counter heights can make the difference between being served or not. The accessible height is between 28 and 36 inches high. The 42 inch service counter where orders are taken and filled at Birdsall Ice Cream Co. caused the DOJ to require management to agree to transact business with disabled customers at the 30” high sales counter near the cash register when requested.

This is just a sampling of access issues the ADA addresses. What barriers are you ready to challenge?

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Accessibility Disability Rights

MAKING PUBLIC COMMENTS: Time Wasted or Well Spent?

Self-Service Kiosk

Hope for people with dwarfism was rekindled on November 16, 1999. The federal Access Board published a Notice of Proposed Rulemaking (NPRM) to update the ADA Accessibility Guidelines (ADAAG). The embers ignited because the NPRM included a proposal to break the six-inch reach barrier in new or altered buildings and facilities by lowering the reach from 54 to 48 inches. If approved, ATMs, gas pumps, elevators—everything activated with a push, pull or turn—would become accessible to little people.

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But wait. Wouldn’t making comments on this issue be a waste of time? Only six years earlier, Robert and I were among the 700 Little People of America (LPA) members and allies who responded to the Access Board’s call for public comments on the exact same issue. And our hopes for equal access were dashed on July 15, 1993 when the banking industry persuaded the Access Board to allow operable parts on ATMs to remain out-of-reach at 54 inches.

Yet even though our letters did not result in a rule change in 1993, our time wasn’t wasted. Our letters attracted the attention of the ICC/ANSI A117.1 Committee on Accessible and Usable Buildings and Facilities. And, in 1994, LPA was invited to join this Committee that writes a building code standard which becomes law when adopted by a municipality or State. As a committee member, LPA successfully advocated to break the six-inch reach barrier in the 1998 edition of the ANSI A117.1 access code which subsequently influenced the Access Board to incorporate the 48-inch reach standard in ADAAG’s NPRM.

LPA members, other disability organizations, and myself as LPA’s delegate responded to the call for public comments on the NPRM updating ADAAG. Five years passed before we could answer the question, was it time well spent? But when the final rule was published on July 23, 2004, the answer was an unequivocal yes! Euphoria barely described the joy of finally seeing the 48-inch standard accepted in the 2004 ADAAG federal standard which applied uniformly across the nation.

But this is not a case of one and done. Almost 20 years later, people with dwarfism and disabilities have a long way to go before achieving equal access. Two words make this very clear—self-service kiosks. These inaccessible machines are popping up in retail stores, hotels, restaurants, health care facilities, all over the place. And because they’re not regulated by the ADA, system advocacy is once again a critical need. We need to do something.

The good news is that the federal Access Board recognizes the problem and has issued an Advanced Notice of Proposed Rulemaking to address it. The Board isn’t ready to propose a rule, but seeks input on what the rule should require. November 21, 2022 is the deadline for submitting public comments to docket@access-board.gov with a subject line reading, ATBCB—2022—0004.

So let’s use our time well again and make comments about what changes are needed to make self-service kiosks accessible to little people. Let’s build on our past success.

For further reference, go to see https://www.adatitleiii.com/wp-content/uploads/sites/25/2022/10/Kiosk-ANPRM.pdf.  

You may also like: “Making the Impossible Happen.” Angela Muir Van Etten blog. October 4, 2021. https://angelamuirvanetten.com/making-the-impossible-happen/ This post is based on events discussed in book II of my dwarfism memoir trilogy: ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities, https://angelamuirvanetten.com/always-an-advocate/.

Categories
Accessibility Medical

Tackling Inaccessible Medical Equipment, Part II

Cirrus DME

My first post on inaccessible medical equipment was April 19, 2021 before and after cataract surgery. Lamentably, a subsequent diagnosis of a hole in the macular mandated surgery and further access to diagnostic eye equipment. Once again, I was confronted by equipment incompatible with my height of three feet four inches.

Although two reams of copy paper enabled me to mount a chair in front of an eye scanner, I was still short of the chin rest. One imaging technician, citing rules against lifting me, suggested skipping the scan. Too bad that this would leave the surgeon without critical information for diagnostic decisions! Clearly, this was not an option.

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All I needed was another couple of inches. So I asked the technician to get another ream of paper. She complied because she had no idea what to do. I leaned left raising my right buttock cheek off the seat and had the technician slide the third ream under this side of my butt. After placing my right cheek on the ream, I asked her to push it to the other side of the chair while I scooted my left cheek onto the ream. And voilà, my torso was raised within reach of the chin rest, and the surgeon got his scan.

My annual cardiology check of my Top Hat mechanical aortic valve is also an occasion for confronting access barriers. Although the electrocardiogram (EKG) and echocardiogram equipment are accessible, the examination table is not. The technologist told me that the office did not have an accessible table because it cost $5,000 compared to the $1,500 for a regular table. The accountants won.

As a result, I declined to climb onto the exam table for the EKG and had the test while seated in a chair. The echo was a different story. Although it could be done with me seated, the result would be more accurate if I lay on the table. Here I surrendered my independence and, with assistance, climbed onto a stool then a chair and up to the table.

I’m only one of thousands, possibly millions, of people with disabilities being denied independent access to medical diagnostic equipment (MDE). So where do we go to file a discrimination complaint? The answer is NOWHERE.

Although the Architectural and Transportation Barriers Compliance Board (Access Board) technical criteria for medical diagnostic equipment (MDE Appendix to 36 CFR Part 1195) was due to expire in February 2022, the rule was extended for three years. The Board sought additional time to complete research on low transfer heights. However, the MDE rule remains unenforceable under the Americans with Disabilities Act (ADA) or Rehabilitation Act because it has not been adopted by the United States Departments of Justice (DOJ) and Health and Human Services (HHS).

So instead of filing a complaint, advocate for the Access Board to expedite the research so that accessible MDE can be mandated by enforcement agencies. And share your experiences on inaccessible MDE with Attorney Advisor Wendy Marshall, (202) 272-0043, marshall@access-board.gov.

For further reading, see Standards for Accessible MDE. A Rule by the Access Board. February 3, 2022. https://www.federalregister.gov/documents/2022/02/03/2022-02133/standards-for-accessible-medical-diagnostic-equipment For discussion of diverse disability issues, follow Top 100 Disability Blogs and Websites at https://blog.feedspot.com/disability_blogs/ You can follow my blog on feedspot or at my website, https://angelamuirvanetten.com.