According to the United Nations there are one billion people with disabilities in the world! You might have read that this week as December 3rd was the International Day of Persons with Disabilities. So how do I write a post with universal appeal? Well upon prayerful reflection and relaxing at the tail end of the Thanksgiving Day parade, I settled on fundraising.
So what does that fundraising have to do with disability? A lot.
Although most of my mail is from charities asking for money, I understand the need and don’t object. But when it comes to disability charities, there are some principles that are essential to protect the dignity and independence of people with disabilities.
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When Robert worked for a nonprofit charity, we stood on these principles at great personal cost. The doctor directing his work recruited a marketing executive to write a draft letter intended for a direct mailing to potential donors. The draft featured both of us, but was so far off base we did not even recognize ourselves. It was clear that the writer knew nothing about little people—much less Robert or me personally.
Indeed, his fundraising philosophy was to tug at the emotional purse strings of the intended donors. The letter was loaded with images of dependency, distress, exaggerations, and offensive words like victim, crippled, plight, and suffering. Robert was portrayed as a pitiful poster child type needing to be rescued from pain and the jaws of death. He was depicted as a patient, not a professional. There was no mention of him being a biomedical engineer with a master’s degree coming to the organization to do medical research.
When we refused to endorse the letter, the only change was the removal of the fictional story about me—the pity-party philosophy still dominated. We met with the letter writer to explain that such fundraising tactics cause little people to be pitied and patronized. In turn, such misrepresentations hinder any conception of little people as equal contributing members of society.
We also presented our philosophy that preserved Robert’s dignity and argued that donors respond to knowing that their contribution is a worthy investment in a people with ability, determination, resilience, hope, and a future. Clearly, the writer was hearing such ideas for the first time. We hoped he could see that our philosophy and his letter were incompatible.
Despite numerous attempts to reach common ground, all draft letters continued with the same gut wrenching appeal for funds. Robert could not agree to this use of his name and person. He could not endorse a letter that encouraged potential donors to view little people as helpless victims dependent on charity. It was a matter of principle.
A parting of the ways was inevitable when the nonprofit secretly mailed the letter without Robert’s knowledge or permission.
These principles apply whatever your country or disability.
This post is a condensed version of chapter 6, Fundraising and Principle, in “Pass Me Your Shoes.”
DWARFISM TRILOGY CHRISTMAS SPECIAL: email me at angela@angelamuirvanetten.com to request all three books autographed—Dwarfs Don’t Live in Doll Houses, Pass Me Your Shoes, and Always an Advocate—for $20, plus $4.00 postage.
