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Celebrations

Celebrate the Gift of Siblings

Siblings Farewell Sydney

Over two-thirds of Americans have at least one sibling. The relationship is one of the most important and usually the longest in a person’s life—typically longer than with parents, spouses, or children. So let’s celebrate our brothers and sisters on April 10, #NationalSiblingsDay.

To the outside world, we all grow old. But not to brothers and sisters. We know each other as we always were. We know each other’s hearts. We share private family jokes. We remember family feuds and secrets, family griefs and joys. We live outside the touch of time.

Clara Ortega

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The siblings of people with dwarfism and disability are especially worthy of praise. As children, many siblings endure more public attention than they want and less attention from parents than they need. Parents love them just as much but, at times, the medical and other needs of their sibling with a disability are all consuming. To cap it off, siblings are often assigned extra duties to help out their brother or sister.

When I was writing “Dwarfs Don’t Live in Doll Houses,” the 1988 memoir of my childhood and young adult years, I asked my brother, Greg, and sister, Deborah, what it was like growing up with me.  Here are some of their reflections:

 It used to make me mad when people stared at you.

I received [a] bloody nose at school from Terry for teasing me about you. . . we had a fight and I came out second best.

It used to annoy me when people fussed over you, knowing that you thought them silly as well. . . but that kind of attention I never wanted anyway.

As for their response to being asked to do things for me—like carry my sun chair down to the beach or my book bag home from school—their recollections varied from annoyance to wincing when watching me carry a bag half my size. For the most part, I was independent and my disability wasn’t on their minds. “At home, I was the older sister and that’s how things were – just that.”

We enjoyed a happy childhood together in New Zealand, but as adults lived with our spouses in Australia and America. Despite the long distance, we continued to share our love and concern for each other. We have traveled thousands of miles to vacation together in all three countries. When visiting in the homes of my siblings, they made accommodations for Robert and I to be independent in the bathroom and kitchen.

As we have grown older and less mobile, Greg and Deborah have pushed wheelchairs, lifted scooters, and helped us up many stairs. In recent years, we have celebrated decade birthdays together with the destination chosen by the one with the birthday. Our 50th birthdays took us to Sydney, Australia; Key West, Florida; and Whangamata, New Zealand; our 60th birthdays were in North Carolina, New York, and Hawaii.

Why wait for your sibling’s birthday? Celebrate them his week. Share how much they mean to you.

For more of my writings, subscribe to my weekly blog at https://angelamuirvanetten.com/ Used print books of Dwarfs Don’t Live in Doll Houses are available on Amazon.com; an e-book is coming soon. 

Categories
Celebrations International

Presidents Meet on St. Pat’s Day

Lincoln Monument

When Bobby walked towards my desk in the New Zealand Embassy library in Washington, DC 40 years ago, for some inexplicable reason my heart beat faster. I was unnerved by the proximity of his brown eyes gazing directly into mine at the same exact height. I don’t remember a thing he said.

Bobby was all smiles as he came closer to me, a petite 27-year-old with a rare type of dwarfism. I looked nothing like the four feet tall, plump, middle-aged woman he had imagined.

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As president of Little People of America, Bobby was on official business meeting me, the president of Little People of New Zealand. I was visiting America on a Winston Churchill Fellowship from the NZ government to research disability civil rights laws and public relations programs designed to improve attitudes towards people with disabilities. My intention was to interview Bobby as part of my research, but it became much more than that.

Our talks began with a three-mile trip to the Lincoln Memorial. Not so easy for this 32-year-old man raised in the small town of Jupiter, Florida. His two months living in the DC area was not enough for him to adjust to driving his over-sized car, that barely fit in traffic lanes, around the confusing DC road system. He got lost and flustered. And the more lost he got, the faster he drove. He even asked me for directions—someone who had been in DC for less than 24 hours and couldn’t see out the car window. He relaxed when we finally pulled into the Memorial parking lot.

We walked across the street and Bobby extended his hand to help me up a curb. However, he continued holding my hand after both my feet were set on the sidewalk. Not ready for such a bold move, I let go of his hand. After all, this could hardly be called a date.

I didn’t need his hand as we rode the elevator to avoid the 57 step climb to President Lincoln’s statue that towered above us at more than six times our height. Like millions before us, we were inspired by the display of Lincoln’s words from the Gettysburg address: all men are created equal. We knew what it was like to be treated as second-class citizens and shared a life mission to achieve equality for people with dwarfism and other disabilities.

Pizza was our choice for the evening meal. Corned beef and cabbage never crossed our minds until a drunken Irishman saw the arrival of two little people as good luck. He invited himself to our table to share Irish jokes. I was impressed with Bobby’s diplomacy when he persuaded him to move along and declined the offer to join him at the Saint Patrick’s Day parade.

Instead, Bobby returned me to my guesthouse where he was more interested in kissing me good night on the cheek than kissing any blarney stone.

And no, it wasn’t love at first sight; that took two weeks.

This post is a condensed excerpt from chapter 1, My Heart Beat Faster, in Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith. The book is available on Amazon, Barnes and Noble, and Books a Million.

Categories
Celebrations

Finding Joy at Christmas

Christmas joy

Many people look forward to Christmas all year long.  Every December 26th my father began the countdown saying, “There are only 364 days until Christmas.” But is there joy in Christmas 2020?

Although Christmas cards, the annual family photo, and newsletters can still be mailed, hundreds of thousands are too sad to write or take photos given the death of loved ones who succumbed to COVID-19 during the year. And for those who did not lose loved ones, the loss of jobs and income makes the cost of buying and mailing a card unaffordable.

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Santa sends letters to children from Santa Claus House in the North Pole, Alaska. But pandemic safety restrictions cancel sitting on Santa’s lap and limit greetings to Zoom, or seeing Santa wearing a mask through plexiglass. Where’s a child’s joy in that? 

Does the daily pick of Christmas stories on TV bring joy? Or are they just a predictable 90 minutes watching families come home for the holidays, buy gifts, donate to charity, bake cookies, drink hot chocolate, climaxed by an unexpected romance ending with a kiss?

Neighborhoods sparkle with Christmas lights, Santas, sleighs, reindeer, and snowmen. But is there joy in the morning? The lights are off and the blow-up figures lay collapsed on the ground. Nativity scenes are hard to find. Not even the traditional Christmas stamp from the United States Postal Service bore any resemblance to the Virgin Mary and baby Jesus revealed in Scripture.

Live Christmas trees are in plentiful supply for the 30 million plus people expected to buy one this year. Perhaps the trend away from “fake” trees is a sign that people are looking for something real this year—something filled with fragrance, life, and joy.

So where do people go to find the true joy of Christmas? The answer is church— the most likely place to hear the Christmas story in Luke 2:9-12:

“Suddenly, an angel of the Lord appeared in radiant splendor before them, lighting up the field with the blazing glory of God, and the shepherds were terrified!  But the angel reassured them, saying, “Don’t be afraid. For I have come to bring you good news, the most joyous news the world has ever heard! And it is for everyone everywhere!  For today in Bethlehem a rescuer was born for you. He is the Lord Yahweh, the Messiah. You will recognize him by this miracle sign: You will find a baby wrapped in strips of cloth and lying in a feeding trough!” 

The Passion Translation

This good news is heard by regular church attendees and 124.4 million CEOs (Christmas and Easter Only). They come to hear Jesus message of full inclusion—for everyone everywhere—seniors and youth, poor and rich, weak and strong, disabled and able,  people of all colors and languages. The joy is in believing that Jesus came to rescue us all. 

So where will you go this Christmas to hear the most joyous news the world has ever heard?

For more of my writings go to https://angelamuirvanetten.com to subscribe to my blog for automatic delivery of weekly posts to your email inbox and for retail links to my book, Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith.

Categories
Celebrations

Wedding Anniversary Cards

Anniversary cards

My 39-year marriage to Robert has defied the odds in two respects. According to United States Census Bureau data, the marriage rate for people with disabilities is much lower than for the general population and the divorce rate is much higher.

After a whirlwind romance, God closed the 8,500 mile distance that separated us in two different countries. And when our marriage hit the wall after 12-years, God intervened to help us work through our problems in marriage counseling.

We share our story to encourage others and to remember what God has done for us.

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“Remember His wonders which He has done,
His marvels and the judgments spoken by His mouth,”
Psalms 105:5. New American Standard Bible

Over the years we’ve celebrated our anniversaries in various ways—dinner out, flowers, jewelry—but the one constant has been exchanging anniversary cards. And despite my desire to declutter, I can’t toss the 80 anniversary cards I’ve saved since our first anniversary in 1982!

“Love is a touch, tender with care,
a meaningful look, secrets to share . . .
Love is excitement, a joy ever new,
love is a faith that dreams can come true.”
Hallmark (1982)

On several anniversaries, I placed cards from prior years in unlikely places around the house for Robert to find. I thought it was fun to surprise him with a card in the refrigerator, a dresser drawer, or wherever he didn’t expect it. But Robert was unimpressed with what he viewed as recycled cards. The addition of a new card each year didn’t erase the memory of the one and only year I forgot and gave him a card from the year before. 

On our tenth anniversary in 1991, since we didn’t have an engagement ring, we added a ruby eternity ring to my wedding ring finger. As Robert wrote in his card to me:

“It’s been ten marvelous years having you at my side in the good ones and the difficult ones. . . through our marriage we have grown stronger and closer to Christ . . . you have made a positive change in my life.”

As we faced down uncertainty in both our careers on our 15th anniversary, we shared an American Greetings card:

“Time may change a lot of things in our lives, but one thing it can never change is the way I feel about you. . . with every passing year you become more beautiful and precious to me. Today and always my heart belongs to you.”

And here’s to closing with some beautiful one liners:

“If I could go back in time to before we met I’d look for you and find you sooner so I could love you longer.” Sunrise Greetings (2012)

“I always thank God for your love.” American Greetings (2013)

“I found the one my heart loves.” Song of Solomon 3:4 (2014)

“I know we’re right where we’ve always belonged—together.” Hallmark (2017)

“You’re the man I’d marry all over again.” (2018)

“Two hearts together, forever, whatever life brings. Hallmark (2020)

For more writings on our marriage, go to https://angelamuirvanetten.com for retail links to my book, Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith and subscribe to my blog for automatic delivery of weekly posts to your email inbox.