Categories
Little People of America Transportation

Successful Spokane Trip

LPA Expo Table

Airfares doubling, flight delays and cancellations, and Robert’s inability to travel combined to make a trip from West Palm Beach, Florida to the LPA conference in Spokane, Washington questionable. Yet I needed to be there. Not because it was LPA’s 65th anniversary, but it was the first opportunity to market my dwarfism memoir trilogy since its’ completion in 2021.

So after prayerful consideration and organizing at-home support for Robert, I flew to Spokane on July 3rd. Given that Delta pilots were on strike, I was grateful to be flying with American Airlines. Prior weeks of airport chaos had me anticipating trouble. Instead, there were no major hiccups.

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TSA staff were friendly and helpful. Just as well, because head-level tables were too high for me to lift my bags onto. Plus a sophisticated scanner negated TSA’s need to unpack my computer and CPAP from carry-on bags. Technology also kept me informed of flight delays. Upon arrival at my Dallas, Texas connection, the American Airlines App on my phone notified me of a delay and gate change. No need to line up for flight information or strain to read departure screens.

As with any trip, I encountered a mixed bag of fellow travelers. Passenger allies provided interesting encounters and helped with things like retrieving my suitcase from the baggage claim carousel. A hostile passenger complained about how long it took TSA to process a veteran with a prosthetic leg. And an inconsiderate passenger used the accessible bathroom stall as a personal dressing room.

A late arrival in Spokane put my accessible taxi reservation in jeopardy. Thankfully the driver waited for me to be reunited with my scooter and checked luggage. I reserve my objection to the $100 surcharge for the accessible taxi for another day—it was my only way of getting to the hotel with my scooter and I didn’t want to be stranded at the airport. 

A midnight arrival at the hotel eliminated a check-in line, qualified me for a two-day breakfast treat of soft peanut brittle, and resulted in a bellhop being immediately available. Even though the room had been prepared for LPA guests, I needed the bellhop to not only bring my bags to the room, but also to remove the soap and shampoo from the wall holders and lower the coffee maker and iron. Despite not noticing the need for a step stool to climb into bed until after he left, I didn’t call him back. I used an overturned trash can. A five o’clock rise and shine message at dawn meant I also overlooked asking how to lower the blinds.

Not only was travel trauma avoided, but also my book marketing objectives were accomplished. All but two of the books shipped were sold at the LPA Expo! And the bonus was attending and presenting at workshops, participating in conversations on sensitive topics, receiving DNA confirmation of my dwarfism diagnosis, connecting with LP past and future friends, and exploring Spokane. All my prayers were answered.

For information on my dwarfism memoir trilogy, go to https://angelamuirvanetten.com/books/.

Categories
FAQs Transportation

Can You Drive?

Steps for car

Years ago, I totally shocked a supposedly educated man who refused to believe I could drive a car at my height of 40 inches. He only accepted it after someone told him I had given him a ride home. It was just as hard for me to believe that anyone could be so amazed. Yet he is not the only person I have surprised.

One afternoon, I parked beside a curb leaving plenty of room between the car in front and behind. When I got out, an onlooker was so impressed he extended his hand in congratulations. It wasn’t in sarcastic relief that I hadn’t bumped his car parked behind me. That wasn’t his car. No, he just didn’t know little people could drive and thought the feat was marvelous.

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All I needed were pedal extensions, seat cushions, the seat moved forward, a smaller steering wheel, and automatic drive. The seat cushions raised me higher in the seat and a smaller wheel eliminated the need to pancake my legs between the wheel and the seat. I also appreciated the better grip and control a smaller wheel provided. Fatigue and discomfort were avoided by building a footrest platform. This removed the risk of the driving-foot falling asleep or any delay in reaction time. The platform also took away any temptation to rest my non-driving foot on the brake.

Fast forward 50 years!

Age has caught up with my husband, me, and our 2004 Mazda 6 wagon. We both use scooters for distance walking, a scooter lift to position them in the trunk, and the Mazda has clocked over 100,000 miles. We drove the Mazda for 18 years because we could not find a wagon that fit two scooters and was low enough to the ground for us to get in without a struggle.

Our long-term plan was to replace the Mazda with a Wheelchair Accessible Van (WAV), but the plan was expedited when I took the Mazda in for service. A garage worker got his foot caught on the left-foot accelerator and totaled it! This catapulted us into the market for a WAV that we can board by driving our scooters up a ramp or onto a lift.

The answer to the can you drive? question remains the same, yes. But how I accomplish this has changed dramatically. In my driving assessment this week, a Certified Driving Rehabilitation Specialist rejected the pedal extension and seat cushion adaptations as unsafe. Instead she recommended hand controls and customizing the power seat that raises me to see out the window to also provide back support. The smaller steering wheel is still an option, but this will involve serious dollars to relocate all the controls on the wheel.

The technology that makes driving a WAV possible is amazing, but buying one for more than the cost of our first home is shocking!

So now it’s my turn to ask a question. Will I be successful in purchasing a WAV without breaking the bank? Stay tuned for the answer. This post includes excerpts from Chapter 7, ‘Doing Things Differently,’ in Dwarfs Don’t Live in Doll Houses. Read more at https://angelamuirvanetten.com/dwarfs-dont-live-in-doll-houses/

Categories
Accessibility Transportation

No Wheelchairs Allowed

No Wheelchair on Train

Our attempt to board the St. Louis zoo-line railroad almost got us arrested in May 1993. Robert and I planned to ride the train and use Robert’s wheelchair to reduce walking between the zoo’s exhibits. But the sign posted at the railroad station telegraphed trouble ahead:

OUR INSURANCE PROHIBITS
WHEELCHAIRS OR STROLLERS
ON THE TRAIN.

Because this was a clear violation of the Americans with Disabilities Act (ADA), we stayed in line determined to ride with Robert’s wheelchair.

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When we reached the front of the line, Robert wheeled onto the platform but was told he must leave the wheelchair at the station. The attendant had no interest in Robert saying he needed the wheelchair when he got off the train. She was adamant he leave the wheelchair behind. We asked to see the manager when she wouldn’t budge even after I told her this refusal was an ADA violation.

Initially we blocked the path of people waiting to board the train, but agreed to step aside while waiting for the manager. When several trains came and went with no arrival of a manager, the need to take further action was evident.

We moved back to the front of the line and when the next train pulled into the station, moved onto the platform ready to board with the wheelchair. However, our plan was thwarted when several zoo security staff surrounded us, blocked our attempt to board, and ordered us off the platform so that the train could leave the station.

Now we had a choice to make. We could cause the trains to stop running by refusing to leave the platform and be arrested for refusing to move. The alternative was to step aside again based on the assurance that the manager was on his way. We chose to be reasonable and moved off the platform so that the train could leave. Even so, we kept the pressure on by blocking the front of the line so that no one could board incoming trains. But this plan was foiled when staff began loading trains from the other end of the line.

It took another 30 minutes for the zoo manager to show up. We were grateful that he recognized separating Robert from his wheelchair was against the law. Even though he wouldn’t allow the wheelchair on the train, the manager offered an acceptable alternative accommodation. We rode the train and watched the wheelchair ride alone in an electric cart alongside the train.

We declined the manager’s offer of a designated driver to ride us around the zoo in an electric cart. A principle was at stake. We didn’t want special treatment. Our only desire was to ride the train like everyone else.

This post is a condensed excerpt from Chapter 14, Let Me Ride, pages 139-141, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities.” Buy your print or e-book copy today at https://www.amazon.com/dp/1737333600/.

Categories
Transportation

Funding Crisis Called For Action

A Call for Action
Image by Christian Dorn from Pixabay 

A crisis exploded after state and federal transit funding for FY2008 (fiscal year) took a 31% cut and forced a reduction from 27 to 18 transit routes in Martin County, Florida. When the county proposed an additional 20% in budget cuts in FY2009, those unable to drive due to brain injuries, cognitive limitations, epilepsy, vision loss, and a myriad of other impairments took action.

As an advocate for people with disabilities at a Center for Independent Living, I recruited, trained, and organized transit riders to plead with the Martin Board of County Commissioners (BOCC) not to cut any funds from public transit.

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As someone who had been driving since age 18, I wasn’t the most critical person to speak. More important spokespeople were those directly affected by the cuts. We joined forces to educate Commissioners on how lives would be negatively impacted if riders couldn’t take the bus to medical appointments, work, stores, and the like. Further reduction in public transit would result in medical emergencies, unemployment, and malnutrition.

Riders dependent on public transit were trained to confront commissioners with emails, letters, individual appointments, personal impact statements, and public comments at weekly BOCC televised meetings. One rider was applauded in the BOCC chamber after telling how she was forced to ride her bike seven miles to her doctor’s office in a heat index of 107℉. This was bad enough, but what about the majority of riders who were unable to compensate by riding a bike.

The action climaxed on June 17, 2008, when 17 Community Coach public transit riders and advocates followed through on their plan to picket at the Martin County Administrative Center.  The picketers were blind or visually impaired, brain injured, mentally ill, and wheelchair users carrying hand-made pickets that read:

■ MARTIN NEEDS COACH ■ SAVE THE COACH, SAVE JOBS ■ LET ME RIDE ■ COACH IS MY LIFELINE ■ COACH IS CRITICAL ■ FULLY FUND COACH ■ NO COACH NO ALTERNATIVE ■ NO COACH NO WAY OUT

Three of the five commissioners responded to my request that they talk to individual picketers during a break from the BOCC meeting. The commissioners responded favorably to the demonstration and went on the record assuring riders that funding for the bus service would remain. Two commissioners agreed that cutting bus funding would threaten the jobs of both riders and bus drivers.

Several media reports spotlighted how proposed budget cuts negatively affected people with disabilities:

  • Daphne Duret, “Elderly and disabled ask Martin commission not to cut buses.” Palm Beach Post (June 17, 2008).
  • George Andreassi, “Disabled fight for Stuart public transit.” Stuart News (June 17, 2008).
  • R.J. Harrington, “Community Coach riders protest to keep a slice of Martin budget.” Stuart News (June 18, 2008).

Despite the warm reception at the demonstration, riders continued advocacy at the July budget workshop to be sure the commissioners didn’t renege on their agreement to spare transit from budget cuts. And the commissioners were true to their word.

So what action have you taken in response to a funding crisis? This post is a condensed version of Chapter 18, Transit Funding and Public Participation, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities” coming in October 2021. Go to my website for book updates, https://angelamuirvanetten.com/books.

Categories
Transportation

Tired of Waiting In Airports?

Waiting at Airports

The average person spends about an hour a day waiting. But if you have a disability, waiting only one hour in an airport would be miraculous.

Waiting begins at check-in. Although seat assignments, boarding passes and baggage tags can be issued in advance, mobility devices require in person check-ins to  answer safety questions and make departure and arrival arrangements for riding the device to and from the airplane door.

Waiting continues at the airport security checkpoint. Typical passengers reportedly wait 28 minutes in security lines, but people with physical disabilities often wait longer.

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We wait for someone to lift our carry-on bag onto the conveyor belt and pass a bin in which to place items for scanning or examination. And then we wait for an agent to direct a bypass from the metal detector for a personal pat-down and test for any trace of explosives on our hands or mobility device.

The Transportation Safety Administration (TSA), TSA PreCheck™ program, expedites security inspections with removal exemptions for shoes, belts, light jackets, laptops and 3-1-1 compliant liquids, but travelers and their medical equipment are still subject to imaging and inspection. Plus the TSA PreCheck™ background check, fingerprinting and personal interview are conducted off-site prior to traveling and cost at least $85. Not worth the effort for occasional travelers and definitely a problem for people like me whose fingerprints are no longer legible.

After security clearance, there’s waiting in line for a cup of coffee or a restaurant table. Despite the generous number of stalls, there’s often a line in the bathroom. It’s especially annoying when waiting outside the accessible stall occupied by a nondisabled person changing their clothes and doing hair and makeup. Transit layovers involve lots of waiting in gate lounges and restaurants. Media, meditating/praying in the chapel, people watching, reading, shopping, writing cards and emails, and sleeping fill the time.

People mistake our priority boarding status for less waiting. But when deplaning, they learn we’re last off. We wait for baggage handlers to bring our scooters to the jetway. On a good day, the scooters are brought to us; on a bad day, instructions are ignored, the scooters are delivered to baggage claim, and we must wait for a skycap. Arriving early in the morning or during peak hours means a long wait. For example, when our plane arrived at Heathrow airport in the UK at 5:00 a.m. we had to wait one hour before any transport staff came on duty. The upside is that by the time we make it to baggage claim our bags are either circulating on the carousel or have been off-loaded. The downside is that off-loaded bags are often taken to a storage area where we wait for staff to retrieve them.

Yet those who wait for the Lord Will gain new strength; They will mount up with wings like eagles, They will run and not get tired, They will walk and not become weary.

Isaiah 40:31

To read more, go to my website at  https://angelamuirvanetten.com where you can subscribe to my weekly blog and find several retail links to my book, “Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith.”

Categories
Transportation

Which Animals Fly for Free?

Service Dog
Image by Paul Brennan from Pixabay

Ever traveled on a plane seated next to a passenger with a yappy dog? Maybe even a miniature horse. Chances are you’ve been on board with one of the 319,000 service animals that airlines transport annually given the Air Carrier Access Act mandate that foreign and domestic air carriers not discriminate on the basis of disability.

Well, as of today (January 11, 2021), you can expect to see a change in which animals fly for free and which ones pay their way as pets. Under a revised U.S. Department of Transportation (DOT) rule, dogs of all breeds and types are exclusively recognized as service animals—and fly for free—

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if they are individually trained to do work or perform tasks for the benefit of a qualified individual with a disability. Miniature horses and emotional support animals no longer qualify as service animals, in the context of air travel, and will be treated as pets subject to more restrictions and fees.

The DOT made the rule change fully aware that removing emotional support animals from the service animal class was a contentious issue with no perfect solution likely to satisfy all stakeholders. Here’s why they made the rule change anyway:

(1) the increase in service animal complaints from passengers with disabilities;

(2) the inconsistent definitions among Federal agencies of what constitutes a “service animal;”

(3) the erosion of public trust in legitimate service animals due to requests to transport unusual species of animals onboard aircraft;

(4) the increasing frequency of travelers fraudulently representing their pets as service animals; and

(5) the increase in misbehavior by emotional support animals—including urinating, defecating, growling, and in some instances, harming people and other animals at the airport or on the aircraft.

Of the approximately 15,000 comments in response to the Notice of Proposed Rulemaking, more than 10,000 concerned the transport of emotional support animals. About one-third of the comments favored excluding emotional support animals from the service animal definition and treating them as pets. The two-thirds who opposed emotional support animals being treated as pets instead of service animals highlighted the needs of those with a wide range of serious mental and emotional disabilities for whom medication is ineffective in relieving stress, anxiety, and depression. The low income of many in this class of disability would also make flying unaffordable given what airlines charge for pets.

Among other things, the new rule allows airlines to require—

—passengers to submit forms related to the service dogs Health, Behavior and Training and, for flight segments of eight hours or more, to attest that the dog has the ability either not to relieve itself on a long flight or to relieve itself in a sanitary manner.

—a service animal to fit on their handler’s lap or in their foot space on the aircraft.

—a service animal to be harnessed, leashed, or otherwise tethered in areas of the airport that they own, lease, or control, and on the aircraft.

There is so much more in this final rule published on December 10, 2020. You can find it in the Federal Register at 85 FR 79742, https://www.federalregister.gov/documents/2020/12/10/2020-26679/traveling-by-air-with-service-animals.

Your comments on this controversial rulemaking are welcome.

For more of my writings, go to https://angelamuirvanetten.com where you can subscribe to my weekly blog and find several retail links to my book, “Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith.”