Categories
Accessibility

A Trendy Olympic Sport – Hotel Bed Climbing?

Hotel Bed Height
Image by Solomon Rodgers from Pixabay

In our last hotel stay, we enjoyed accessibility in the parking lot, at the entrance and service counter, and in the elevator. We could even reach the key card slot for our room. But when we opened the door to our accessible room, we were dismayed.

It wasn’t something silly like the remote on top of the TV or towels on high shelves. No, it was height of the bed. How would we climb onto it? The bed was level with our chest and must have been at least 27 inches tall. At our height of 40 inches, this was an impossible feat. There was no stool in sight and none were available at the front desk.

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In the last decade, hotels have trended to taller beds, with the top of the mattress ranging in heights from 25 to 30 inches from the floor. Although we borrowed a stool from the gift shop, this solution would not work for people who use wheelchairs. The typical seat height of a wheelchair is 19 inches above the floor.  So a bed as tall as 30 inches creates a height difference of nearly one foot! An independent transfer is impossible and standing on a stool is unattainable.

So how could this happen in an accessible room? Doesn’t the Americans with Disabilities Act (ADA) address bed height? Well, not specifically; tall beds weren’t a problem in 1990 when the ADA was passed. As a result, the ADA Accessibility Guidelines (ADAAG) are silent on the subject. Even though ADAAG was updated in 2010, no bed height mandate was added.  

However, all is not lost for people with disabilities who don’t qualify for the “Olympic sport” of bed climbing. The hotel can be asked to make reasonable modifications in the assigned guest room. Engineering or maintenance staff can be called to lower the bed by removing the bed frame, box spring, or mattress and replace it with a lower profile mattress. 

If the hotel refuses to make the modification, complainants can take this access violation to court. For example,  an ADA Title III (42 U.S.C. §§ 12181-12189) lawsuit on inaccessible tall beds, Migyanko v. Aimbridge Hospitality, LLC, was filed in a Pennsylvania federal court on June 7, 2021. Although ADAAG does not cover hotel bed height, both the plaintiff and the U.S. Department of Justice argue that the ADA’s general nondiscrimination requirements apply and require hotels to make reasonable modifications where necessary to provide the hotel’s goods and services to people with disabilities.

Alternatively, a petition can be filed with the U.S. Access Board to change ADAAG to “require bed regulations in wheelchair accessible lodging facilities.” Gina Schuh has started this ball rolling. Her petition to the Access Board on bed design at change.org currently has 87,320 signatures.

So let’s celebrate the ADA’s 31st birthday by putting an end to hotel bed climbing. This is not a “sport” suitable for people with disabilities.

Read more about access issues in the first book of my dwarfism trilogy, Dwarfs Don’t Live in Doll Houses, Chapter 5, At Your Physical Pleasure. Pre-owned copies are available on Amazon and an e-book is coming soon.

Categories
Celebrations

Blog Anniversary – First Year Favorites

logo and tagline

ADA 30-Year Milestone, August 3, 2020, https://angelamuirvanetten.com/lift-on-bus/ 

Post excerpt: Thirty is a great age. . . The Americans with Disabilities Act reached this milestone on July 26, 2020—the day when disability rights were recognized as civil rights.

Staying Safe in Church, August 10, 2020, https://angelamuirvanetten.com/staying-safe-in-church/

Post excerpt: So why would a church reopen after a mandatory lockdown without . . . asking people to wear face masks? . . . It forces high-risk people . . . who depend on others to wear masks, to keep a safe distance at home.

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Jane Oliver comment: [I] came to the same conclusion you did here. . . I just don’t get what is so hard for anyone, especially Christians, to understand about how to love and serve others.

One Smile Worth 2,000 Chocolate Bars, October 12, 2020, https://angelamuirvanetten.com/one-smile-worth-2000-chocolate-bars/

Post excerpt: Six months after starting a new job, a kindergarten height toilet suddenly appeared in the bathroom. . . I had to ask, What did the company think I’d been doing all this time when I needed to use the bathroom?

What should I call you? November 2, 2020, https://angelamuirvanetten.com/what-should-i-call-you/

Post excerpt: The better question to ask is, What’s your name?

“Accessible” Public Bathroom Absurdities, November 16, 2020, https://angelamuirvanetten.com/accessible-public-bathroom-absurdities/

Post excerpt: On National Absurdity Day my mind jumps to my collection of absurd “accessible” public bathroom photos.

Kathy Bates comment: I’m both laughing and weeping at these photos. . . Disability is not for wimps!

Underdog Motivation, December 14, 2020, https://angelamuirvanetten.com/underdog-motivation/

Jessica Morgenthal comment: I have dwarfism. . . My 4th grade teacher told my parents that I would not amount to anything . . . My parents . . . pushed me to show her that she was wrong. . . I graduated [college] with a Bachelor of Science . . .with a 4.0 GPA. 

 “Death with Dignity” Laws Deadly to Disabled, January 18, 2021, https://angelamuirvanetten.com/death-with-dignity-laws-deadly-to-disabled/

Post excerpt: “Death with dignity,” as physician assisted suicide is euphemistically called, is legal in Washington, D.C. and eight states.

Vigilante Policing of Disabled Parking Spaces, February 8, 2021, https://angelamuirvanetten.com/vigilante-policing-of-disabled-parking-spaces/

Erica’s comment: I strongly agree . . . I know many people with hidden disabilities who have been harassed and treated unfairly because they don’t look like they need it.

Paulette Beurrier (guest). Celebrate People Blessed With Down Syndrome, March 22, 2021,https://angelamuirvanetten.com/celebrate-people-blessed-with-down-syndrome/  

Post excerpt: Faith was the first student with Down syndrome to graduate with a standard diploma in our county!

Susan’s comment: Our 16 year old grandson with Ds is a blessing to our entire family! 

Tackling Inaccessible Medical Equipment, April 19, 2021, https://angelamuirvanetten.com/tackling-inaccessible-medical-equipment/

Marge Carlisle comment: Great post and personal story. I need an eye exam and have been wondering how I will navigate my eye doctors exam rooms with my power wheelchair. It will elevate, but just navigating the room will be a tight squeeze.

Advocacy Makes Change Possible, May 17, 2021, https://angelamuirvanetten.com/advocacy-makes-change-possible/

The third book in my dwarfism trilogy—Always An Advocate—offers hope to those who are skeptical about changing society’s discriminatory treatment of people with dwarfism and other disabilities.

Measure Up for Independence, July 5, 2021, https://angelamuirvanetten.com/measure-up-for-independence/ 

Post excerpt: The Measure-Up Campaign was one of the many battles Little People of America won in our fight for independence [in the built environment].

Categories
International

Diving on the Great Barrier Reef Without a Scuba Tank

Great Barrier Reef

Scuba diving on the Great Barrier Reef had been on Robert’s bucket list for years. The reef, one of the seven wonders of the natural world, is the only living thing on earth visible from space. A decade ago, Robert couldn’t don a space suit to see the 1,429 mile reef. So he packed his custom-made wetsuit, snorkel, goggles and flippers to see the reef underwater. However, his trip of a lifetime to Port Douglas in Queensland, Australia was missing an essential document—a scuba diving certificate.

Knowing that other little people are certified scuba divers, Robert was optimistic he would qualify.

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He studied in a classroom, in the pool, and in the Jupiter, Florida inlet with a professional scuba diver who had experience teaching people with disabilities. But it was not to be. Scuba tanks of different sizes tipped Robert backwards and he was unable to flip himself over to see where he was going. Nothing worked. He would have to find another way to see the reef.

My Australian family joined us on the trip to Port Douglas. But when we stepped off the elevator on the way to our hotel rooms we were shocked to see a half flight of stairs. What? We had booked an accessible room! But the front desk insisted that there were none available. This meant that my brother, sister, and brother-in-law were stuck carrying two 100lb scooters up and down the stairs every time we went out.

But there was no point in staying mad. We determined to enjoy a week together surrounded by the beauty of God’s creation in wildlife parks and the Daintree Rainforest. We held a parrot, cockatiels, and a koala so big that it hardly fit on Robert’s lap. Our encounter with crocodiles occurred in the wild, but thankfully we were on a boat.

And Robert did find another way to go underwater on the Great Barrier Reef. In Diver Dan fashion of the 1960s TV show, he descended about 12 feet wearing a glass diver’s helmet attached to an oxygen hose. After diving staff helped Robert down the vertical ladder, they closely monitored the water level on his helmet as it lapped just under his nose!

There was no mermaid, but Robert was accompanied by my sister, Deborah, as they did their ocean walk on a platform above the reef. They marveled at fish swimming right past their faces. Robert capped off his day on the reef snorkeling at surface level with Deborah and my brother, Greg.

In contrast, I was content to view the fish and coral through the windows of a semi-submersible boat seated just one meter underwater. The closest I got to checking off a bucket “list” item was deplaning onto the tarmac in Cairns, Queensland in a bucket “lift;” this was necessary as the plane did not pull into a gate served by a jetway into the terminal.

So what items have you checked off your bucket list?

This is an expanded story from chapter 24, Dad’s Alzheimer’s Disease, in “Pass Me Your Shoes.” Retail links to the book are found at https://angelamuirvanetten.com.

Categories
Accessibility Little People of America

Measure Up for Independence

Measure Up

Independence is highly valued and celebrated by nations, people groups, and individuals. For some, independence relates to coming of age and, for others, it’s a prolonged struggle with many battles along the way. For people with dwarfism, independence in the built environment is a prolonged and ongoing struggle. The Measure-Up Campaign was one of the many battles Little People of America (LPA) won in our fight for independence.

When LPA applied for membership on a national committee setting building code standards in accessible and usable buildings and facilities in 1994, we had one primary objective—to change the standard to lower equipment with operable parts to be within the reach of people with dwarfism. We asserted our right to independently use ATMs, self-serve gas pumps, elevators, and the like.

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LPA knew that our request to amend the standard to lower operable parts on equipment by six-inches, from 54 to 48 inches, was like firing the first shot across the bow. We anticipated resistance from the affected industries represented on the committee. And the push back was immediate. Committee members returned fire with a call for more research. As LPA’s representative on the committee, I quickly learned that a committee call for research was “code” for delay and denial.

Instead of waiting for the committee to conduct the research, LPA took action to answer the questions:

  • Is 48 inches the right height?
  • How high can people with dwarfism reach?
  • And what effect will this have on people with other disabilities?

The 1995 LPA national conference in Denver, Colorado was perfectly timed for gathering the data to answer these questions. And so the LPA Measure-Up Campaign was born.

Robert Van Etten (a rehabilitation engineer and former LPA president) partnered with Dr. Ed Steinfeld (an architect, university professor, and Committee member) to design a reach range survey. One hundred subjects would have made the survey statistically valid. This number was easily surpassed when the Measure-Up Campaign captured the measurements of 172 adult little people. The reward of a Hershey chocolate kiss may have induced some to line up for measurements of their height, arm extension, eye height, and vertical reach, but the desire to independently use ATMs was a greater motivation. The results were documented in multiple tables and graphs in the study called the “Anthropometric National Survey of Adult Dwarfs of 1995.”

Within weeks of the survey, I returned to the Committee meeting armed with research results that pulled the rug out from under those determined to keep the status quo. The data documented that if the unobstructed side-reach standard was reduced to 48 inches about 80% of people with dwarfism would be able to reach ATMs and everything else activated with a push, pull, or turn.

Winning this key battle moved committee members beyond sympathy and forced them to face the need to break the six-inch reach barrier. People with dwarfism and other reach disabilities were one step closer to functioning independently in public places.

This post is adapted and excerpted from Chapter 15, Breaking the Six-Inch Reach Barrier, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities” releasing in October 2021.