Colleen Angela Van Etten

Despite Section 504 being signed into law by President Richard Nixon, Section 504 was not enforced for four years. This was in large part due to businesses and organizations lobbying against implementation, arguing that it was burdensome and unfair to expect them to implement accessibility or lose federal funding. 

One of the 504 Sit-in participants Corbett Joan O’Toole shared, “At that time in history, there was simply no access—no right to an education, no public transit. You couldn’t get into a library or city hall, much less a courtroom.” Disabled people wanted to see the government committed to disability inclusion and access. The disabled activists warned that if Joseph A. Califano Jr., who served as the Secretary of Health, Education, and Welfare (HEW) during President Jimmy Carter’s administration, didn’t take action by April 4th, nationwide protests would ensue. 

On April 4th, 1977, after the government did not sign the regulations into law, protests took place all over the country. In San Francisco, over 500 disabled individuals and their allies attended a rally on San Francisco’s Civic Center Plaza. Most of the protests happening across the country ended that day. But after the San Francisco rally, nearly 150 people with disabilities streamed into the HEW Federal Building and over 120 activists occupied the building, and refused to leave until their demands were met, even when threatened with arrest and eviction. 

Government officials attempted to remove the activists from the building by cutting the phone lines and denying them food, water, medicine, and more. But the disabled protestors used sign language to communicate through the windows of the building to work with allied groups to get food, medicine, blankets, and more.  Support came from a wide range of organizations and individuals, including labor unions, religious groups, civil rights activists, and the Black Panthers.

After two weeks of protesting, a group of Sit-in activists journeyed to Washington D.C. to intensify their efforts against Califano. They organized candlelight vigils outside of his residence and attempted to enter his office building by forcefully pushing their wheelchairs against the doors when their request for entry was denied. While in the capitol, Judy Heumann addressed congressional representatives and reporters:

“I can tell you that every time you raise issues of ‘separate but equal,’ the outrage of disabled individuals across this country is going to . . . be ignited. There will be more takeovers of buildings until finally maybe you begin to understand our position. We will no longer allow the government to oppress disabled individuals. We want the law enforced.” 

After 28 days of the Sit-in and consistent pressure from the protestors, Califano finally signed Section 504 regulations. This protest also helped pave the way for the Americans with Disabilities Act of 1990 which expanded disability rights protections to the private sector and State and local governments. 

As Kitty Cone shares, the Sit-ins were “the public birth of the disability rights movement. . . For the first time, disability really was looked at as an issue of civil rights rather than an issue of charity and rehabilitation at best, pity at worst.”

Today, the legacy of the 504 Sit-in lives on, as people with disabilities continue to fight for equal access and accommodations in all aspects of society. The protest was a powerful reminder of the importance of standing up for one’s rights and fighting for change, even in the face of adversity. 

This post is a condensed version of a blog post by Maddie Crowley. “Disability History: The 1977 504 Sit-In,” https://disabilityrightsflorida.org/blog/entry/504-sit-in-history. It is republished with permission from the author and Disability Rights Florida.

I worked with both Linda and Sharon—and other beneficiaries—trying to piece together records that might account for the overpayments that racked up when they temporarily returned to work and the SSA continued to make benefit payments. The SSA is notorious for waiting years before sending overpayment letters. In the meantime, the benefit amounts received were spent and records were lost. After spending time with some of these beneficiaries, I found that locating copies of letters—the ones beneficiaries said they sent the SSA reporting the times they returned to work—was a lost cause.

I typically settled on a practical solution and made Requests for Waiver of Overpayment Recovery or a Change in the Repayment Rate. An SSA-contracted benefits consultant was skeptical about the SSA’s willingness to reduce the monthly repayment amount any lower than $75 a month. He marveled when I negotiated $50 per month withholding for Linda and $25 for Sharon.

            Almost 15 years later—under the direction of newly appointed Commissioner of Social Security, Martin O’Malley—the SSA announced that, effective March 25, 2024, it will decrease the default overpayment withholding rate for Social Security beneficiaries to ten percent (or $10, whichever is greater) from 100 percent. The goal is to ensure SSA overpayment policies are fair, equitable, and do not unduly harm anyone. O’Malley described it as “unconscionable that someone would find themselves facing homelessness or unable to pay bills, because Social Security withheld their entire payment for recovery of an overpayment.” (Limited exceptions to this change, such as when an overpayment resulted from fraud.)

The change applies to new overpayments.  If beneficiaries already have an overpayment withholding rate greater than ten percent and want a lower recovery rate, they too should call the SSA at 1-800-772-1213 or their local SSA office to speak with a representative.

Beneficiaries retain the right to appeal the overpayment decision or the amount.  They can ask the SSA to waive collection of the overpayment, if they believe it was not their fault and can’t afford to pay it back.

And O’Malley has brought even more good news. The burden of proof for a clawback of an overpayment will shift from the beneficiary to the SSA! Oh how Linda and Sharon would have benefited from this rule. And other reforms are being considered, such as a statute of limitations on clawbacks.

This post is based on a condensed version of Chapter 19, Social Security Benefits Representation in “ALWAYS AN ADVOCATE[MOU1] : Champions of Change for People with Dwarfism and Disabilities” by Angela Muir Van Etten and a March 29, 2024 announcement by Jeffrey Buckner, Acting Deputy Commissioner for Communications, reducing the Overpayment Recovery Rate to 10 Percent.