Categories
Disability Rights Inclusion

From Minus one Million to Plus Seven Million

Education
Image by Ernesto Eslava from Pixabay

The last 55 years has drastically changed the educational landscape for American children with disabilities. In 1975, one million were excluded from the public school system and, by 2018, almost seven million received special education services.

For centuries, children with disabilities were considered unteachable and not worth educating. For example, children with dwarfism were often hidden at home or destined for display as freaks or entertainment in the circus. Schools were not required to make accommodations and many children were sent to special schools that offered a separate and unequal education.

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So what accounts for the drastic change? The answer points squarely to the passage of the Education for All Handicapped Children Act on December 2, 1975 (later renamed the Individuals with Disabilities Education Act, IDEA). The law passed because the federal government decided it was in the national interest to help States and localities provide programs to meet the educational needs of children with disabilities. IDEA mandated that children with disabilities receive a free and appropriate public education in the least restrictive environment.

So with December 2nd now designated as #SpecialEducationDay, the focus is on IDEA’s implementation. It’s one thing to get a law passed, it’s quite another for it to be followed. As a former special education advocate, I attended hundreds of Individual Education Plan (IEP) meetings to resolve IDEA’s hot button issues on student eligibility, placement, accommodations, services, and fidelity.  

In determining whether a student is eligible for special education services, parents and school personnel often disagree. Psychological and/or neurological evaluations are needed to resolve the dispute. Once eligibility is settled, an annual IEP is written to document the student’s free and appropriate public education. Measurable goals and objectives are included to ensure the student makes meaningful progress. The IEP also contains needed services, placement, and accommodations.

Placement is an individualized assessment based on the needs of each student. It is by far the most contentious IEP issue as it wrestles with the mandate that students be educated in the least restrictive environment. IEP teams decide what percentage of the day a student will be educated in a regular classroom, a separate special education classroom, a combination of the two, a separate school for children with disabilities, virtual school, or hospital homebound.

Inclusion in regular classes is IDEA’s default position and a student will only be segregated from their peers when the special education services are more appropriate in another setting. School district budgets and resource allocations are not supposed to be part of the equation. But sadly, students are often relegated to separate classes or schools because funds are not available to support the student’s needs in the regular classroom or neighborhood school.

Although a lot of progress has been made since 1975, there is a long way to go before students with disabilities are assured equal protection under the law. Advocacy is needed to secure adequate funding for special education. Vigilance is vital to ensure children with disabilities are identified early and receive equal education opportunities. For more of my writings go to https://angelamuirvanetten.com where you can subscribe to my weekly blog and find several retail links to Pass Me Your Shoes: A Couple with Dwarfism Navigate Life’s Detours with Love and Faith.

Categories
Disability Rights

Car Rental and Marriage Mulligans

Car rental
Image by kenny2332 from Pixabay

Golfers understand the importance of a mulligan i.e. when a player gets a second chance to replay a specific move. National Mulligan Day was observed on October 17th, but if you’re like me, you can think of many times in real life when you needed a second chance. Two times when this played out dramatically for me was when renting a car and in our marriage.

The first time we rented a car was in 1986 when we returned to New Zealand to visit family. When Robert went to pick up our reserved car, the clerk refused delivery. Unfortunately, prior to our arrival my father told the car rental agency that we were little people and the company directed the clerk not to rent us the car.

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Thankfully, our vacation plans were salvaged when the clerk rented us the car because my father co-signed on the rental agreement.

Four years later, we experienced our car rental mulligan on the way to speak at a national conference of the Restricted Growth Association—the English equivalent of LPA. At Heathrow airport in London, we waited at the designated place for a ride to the car rental agency. The driver told us we were in the wrong line, but loaded our bags into his van with obvious skepticism. After the debacle at the NZ car rental agency, in this mulligan, we pre-paid the car rental and held disclosure of our stature until arrival at the service desk. We counted on the difficulty of refusing service to someone standing there with a pre-paid voucher for a reserved car.

When we presented our voucher, the young clerk disappeared behind closed doors. A more senior person emerged and asked how we planned to drive the car. Robert showed him the pedal extensions and seat cushions we had brought with us. Despite their doubts, management reluctantly agreed to let Robert install the extensions. But to be sure we were not an insurance risk, the manager insisted on driving around the block with us before letting us loose on English roads with his vehicle.

Marriage counseling also gave us a mulligan in our relationship that in 1993 was on the brink of divorce. Robert’s workaholism and 90-hour work weeks left me alone on nights and weekends. I had to negotiate to get Robert to do anything with me. I was living in the worst of two worlds—the loneliness of being single with the constraints of being married.

Thankfully, we got our “do-over” when John, our church Pastor of Family Life and Counseling, helped us understand the dynamics of our relationship. He worked with us on our relationship vision, childhood frustrations, a partner profile, unfinished business, and communication. We even wrote pledges to each other on issues relating to responsibilities, scheduling, spending time together, and supporting one another. We saw the light of day in our marriage, starting with a renewal of our marriage vows and taking the word divorce off the table.

Please comment with any mulligans you’d like to share.

This post was adapted from Pass Me Your Shoes: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith. Order your copy today at Amazon.com, Barnes & Noble, Books a Million or other retailers.

Contest (open from October 19-31 midnight)

Enter the car rental contest and be entered into a drawing for a $25 digital Amazon gift card.  Post, tag me, and share on social media a selfie holding your copy of Pass Me Your Shoes with a thumbs up or thumbs down gesture next to an actual or virtual car rental sign. To qualify for a second entry into the drawing, make a comment explaining the reason for the thumbs up or thumbs down. Look for the announcement of the winner of the drawing on my website at https://angelamuirvanetten.com on November 2nd.  

Categories
Disability Rights

REGISTER TO VOTE, THEN VOTE AND MAKE IT COUNT

Vote



Image by amberzen from Pixabay

Are you registered to vote? National Voter Registration Day on September 22, 2020 is a good day to check. If you’re thinking why bother, read on to find out why voting matters for both constituents and election workers.

Constituent Voters

V ─ VOTE because federal laws—the Americans with Disabilities Act and Help America Vote Act—protect the voting rights of people with disabilities.

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O ─ ONE vote can make the difference between winning and losing an election. Google it and you’ll see. Tie votes have been broken by pulling a name out of a hat, a coin toss, or drawing the highest card. Don’t surrender your vote to chance! Did you know that, in the 2018 midterm election, 20% of voters either had a disability or lived with someone who had a disability? i.e. more than Hispanic/Latino voters. Vote and be sure that our powerful voting bloc is heard.

T ─ TOUGH choices in troubled times is no excuse for not voting. Tear through the trial of long lines or people not wearing masks, and vote early or by mail.

E ─ EDUCATE yourself on candidate platforms, referendums, and proposed amendments.

R ─ REGISTER to vote prior to rolls closing for the November general election. If you don’t know the registration cut-off date, find the date in your State by clicking on this link, https://www.vote.org/voter-registration-deadlines/

S ─ SERVE as an election worker. If you need an accommodation, ask for it. I served as an Inspector giving voter passes at eight primary or general elections with two accommodations—my adjustable height Ergo Chair for Little People and a block of wood. Yes, you read that right, a block of wood! The block was placed under the back of my assigned Electronic Voter IDentification (EVID) machine tilting it forward so I could read the screen.

Election Workers

V ─ VALUE differences in each unique voter.

O ─ OFFER help, but allow voters to choose their own helper—a friend, family member, or an election worker. If help is accepted, ask how you can help and wait for instructions. Don’t insist on helping if the offer is refused.

T ─ TRAINING is mandated to promote access and participation of individuals with disabilities. Local disability advocates are ideally suited to conduct this training. For ten years, I provided disability sensitivity training to election workers on terminology, communication, respect, and access issues.

E ─ EQUAL access to facilities and equipment is required. This includes the opportunity for private and independent voting. Accessible voting machines—equipped with earphones and other modifications—must not only be in the precinct, but must also be ready to use.

R ─ RESPECT a voter’s pace and space.For example, don’t pat or reach over a voter’s head.Allow a voter to move and speak at their own pace.

S ─ SPEAK with a typical voice volume, tone and subject matter.  People who are blind are not deaf. People with dwarfism are not children. People with intellectual disabilities understand what workers say about them.

Almost time to order your copy of Angela Muir Van Etten’s book—PASS ME YOUR SHOES: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith—which releases during Dwarfism Awareness Month in October 2020.

Categories
Disability Rights Inclusion

ADA 30-year milestone

Thirty is a great age—young enough to meet the world head on and old enough to be taken seriously. The Americans with Disabilities Act (ADA) reached this milestone on July 26, 2020—the day when disability rights were finally recognized as civil rights.

At 30, the ADA is old enough to be taken seriously by people who ignore the right of people with disabilities to be fully included at school, in the work-force, or on public transportation, to name a few protected rights.

It is against the law for school districts and colleges to deny equal access to programs or facilities.  The photo of a student with a disability can’t be left out of the year book, students must be included on field trips, reasonable accommodations must be provided.  Yet the ADA is young enough that people with disabilities are still twice as likely as those without a disability not to finish high school. Disability advocates must fight for student inclusion and accommodations.

The ADA is violated when employers refuse to hire someone because they are perceived as being too short, looking different, talking funny, making customers uncomfortable, or otherwise not fitting in. Yet the ADA is young enough that many people with disabilities ready and able to work are still denied this opportunity. According to the U.S. Bureau of Labor Statistics, in 2019, only 19.3% of people with a disability were employed compared to a 66.3% employment rate for people without a disability. The 7.3% unemployment rate for people with disabilities was double the 3.5% rate for those without a disability.

Federal law is broken when local governments deny people with disabilities access to public transportation. Buses without lifts should not be bought, roads without curb cuts should not be built, door-to-door service should not be denied to those unable to get to a bus stop, taxi companies should not be operating without a sufficient number of accessible vehicles to service customers unable to board regular taxis. Yet the ADA is young enough that people with disabilities are denied access to public transportation all across the country on a daily basis.

At age 30, the ADA can meet the world head on as a powerful tool people with disabilities, families and advocates can use to achieve justice and equality for all. We can’t sit around waiting for somebody else to enforce the rights protected by the ADA. Nothing will change until somebody becomes the someone who cares enough to do something. And that somebody needs to be me! Not me alone, but me and many others working together as a coalition. Not only is the world too big for one person to conquer, the task is so huge that one person will buckle under the weight. Tapping into our collective power is essential.

So, let’s not get tired of doing what is good. At just the right time we will reap a harvest of blessing if we don’t give up.” Galatians 6:9 (New Living Translation)

Look for the Fall release of my book—PASS ME YOUR SHOES: A Couple with Dwarfism Navigates Life’s Detours with Love and Faith—which discusses what happens when God intervenes in a marriage complicated by dishonesty, dwarfism, discord, and discrimination.