Categories
Medical

Adapting to Changes in Climate and Age

Aging queen

In July 2003, Robert was shocked when we landed in my homeland of Auckland, New Zealand. He’d been there before, but was not a fan of winter visits. The 50 degree Fahrenheit drop in temperature from Florida’s 90 to Auckland’s 40 revealed Robert’s dependency on indoor temperature control. Telling him that the drop was only 27.5 degrees in Celsius was no consolation. Robert compensated by using dad’s two-month supply of kerosene for the heater in only three days.

Despite being irritated by this unexpected depletion in his fuel supply, my father threw open all the windows to let some fresh air into the over-heated room. 

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Robert was shocked again. He had not learned how to adapt to New Zealand’s way of staying warm—only use a heater to take the chill off the early morning air and wear winter clothes inside.

When we flew to Sydney, Australia to visit my siblings and other family members, it was my turn to adapt. Shortly after a surprise 50th birthday celebration—where I was crowned the queen—I was rudely reminded of my advancing years. I fell and severely sprained my wrist the day before we flew home. I had one night to ice it, then fellow passengers across the Pacific suffered with me as I massaged my wrist with the penetrating and aromatic Goanna extra-strength heat cream. The healing process was impeded by the need to continue lifting myself on and off chairs, toilets, and in and out of the car.

I was also losing range of motion in my ankles. The pain interrupted my sleep, reduced my already limited walking distance, made stairs and curbs impossible to climb without a railing, and required avoidance of uneven surfaces like grass and gravel.

At the end of August, I went to a local orthopedist for x-rays. After looking at the images, he came into the room, was surprised not to see a wheelchair and amazed I could walk independently. He pronounced severe arthritis and prescribed a scooter and a lift to get it in and out of the car.

In September, I brought the x-rays to Dr. Mary Matejcyk, the same orthopedist who replaced Robert’s hips in 1997. She advised that the spontaneous fusion of my ankle joints was causing the pain. This sounds bad, but it was actually good news. Surgical intervention would be to fuse the joints and my ankles were doing this on their own. The only concern was that the ankles fuse in the right position for standing; thankfully, this appeared to be happening. When the fusion was complete the pain would end. And she was right.

Robert had no health incidents in 2003. However, he got quite a scare on the scales at the doctor’s office. The calibration on our home scale was off by seven pounds. We both admitted we needed to lose weight to reduce the stress on our joints.

So how were you reminded of National Senior Citizens Day on August 21st?

Read more about dwarfism issues in my dwarfism trilogy, https://angelamuirvanetten.com/books/.

Categories
Vacations

Water and Wildlife Camping

Camping in Mexico New York

My childhood summer vacations were spent camping in beach towns about a two hour drive from home. So in August 1990, I was up for a two hour drive to camp for the weekend with the New York Finger Lakes LPA chapter in Mexico, New York. But Robert’s idea of being ready to leave when I got home from work on Friday night was having a borrowed kayak strapped on top of the van with the help of two elderly neighbors. He had packed no food or camping gear!

As a result, we arrived at the camping ground after dark without a lantern and needed help putting up our tent.

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Despite the availability of cabins, we chose to rough it in a campsite with no electricity to be as close as you could get to the river without getting wet. On Saturday, Robert enjoyed kayaking in the river as I sat in my sun chair at the river’s edge half studying for an exam and half watching chapter members splashing around.

            Five years later, we camped in the Florida Everglades National Park. Robert’s family set up tents for the men and boys with a spectacular view of Florida Bay. I escaped the mosquitoes and flies by staying with Robert’s sister and cousin in a cottage with air conditioning, a bathroom, and kitchenette. Even though the campers laughed at us, they didn’t hesitate to visit for food and amenities.

Robert accepted that poisonous snakes made swimming inadvisable,but he ignored the if-you-don’t-bother-them-they-won’t-bother-you advice when confronted by a growling alligator. When the canoe he shared with his niece unexpectedly disturbed an alligator resting on an embankment, Robert tried to convince her not to paddle away until he got a photo. She had the sense not to listen to him.

We rang in the New Year of 1996 sleeping in a pup tent in New South Wales, Australia—one week camping with my sister Deborah and family at Myall Lakes; the other with my brother Greg and family at Kiama.

Myall Lakes included relaxing in the water, riding a Jet Ski, and sight-seeing the lakes in a boat. However, Robert’s Jet Ski joyride turned into terror and the scariest three hours in his life. He got lost; went numb in the cold water; his joints hurt from cutting through the waves; and the weeds clogged up the Jet Ski, twice. When he finally found his way, he was most upset to have missed seeing a huge goanna lizard take a leisurely stroll through our camping ground.

The rain dampened our plans at Kiama, but the tree frogs had a blast. Greg’s attempt to quiet them down at night by yelling and throwing cans was futile, albeit entertaining to watch. When our tent got soaked, we moved into the family tent. We amused ourselves reading, shopping, going to the movies, and playing cards. The weather cooperated enough for us to visit a wildlife park where we walked among and fed the kangaroos.

So tell me about your camping stories.

This post is excerpted from our camping experiences discussed in “Pass Me Your Shoes,” the second book in my dwarfism trilogy, chapter 10, Season of Travel; chapter 13, Family Highs and Business Low; and chapter 14, What a Difference Ten Years Makes. Buy links are available on my website at https://angelamuirvanetten.com/pass-me-your-shoes/.

Categories
Awareness Little People of America

Dual Donahue Dialogue Differences

Donahue LPA panel

A two-time guest of Phil Donahue, the father of daytime talk shows, I appeared on August 8, 1984 in Chicago and October 12, 1989 in New York City. In 1984, a producer asked Robert Van Etten, president of Little People of America (LPA), to name panelists; in 1989, a producer invited me to join a panel based on my many media interviews resisting dwarf tossing.

But what a difference five years makes.

In Chicago, the LPA panelists were honored guests in the historic and luxurious Drake Hotel. We joined LPA friends riding in a limousine to the studio, being pampered by hair and make-up artists and hanging out in the green room.

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Donahue talked with us before and after the show. He was playful with the kids and humbly kneeled in the center of our group photo. And we were treated to a post-show fine dining luncheon at the Drake.

In New York, I stayed in a nondescript hotel and my limo ride to the studio was with panelists I didn’t know. We did not see Donahue before or after the show and the food platters in the green room substituted for any post-show meal.

In Chicago, we had no concerns about the program veering off in the wrong direction. We trusted the show would educate the studio and TV audiences about LPA and dwarfism. Our diverse panel was well equipped to answer questions on marriage, parenting, education, employment, medical and other issues. There was no pitting one group against another.

Not so in New York. In order to maintain market share, Donahue had gradually shifted from thoughtful conversations to more sensational topics. For example, in a 1987 show on cross-dressing, he wore a woman’s skirt! So what would I encounter on a show on the violent entertainment of dwarf tossing and roller derby in which the loser is tossed into a pool with alligators?

I was thrown into a lopsided debate on New York State’s proposed ban on dwarf tossing in licensed establishments serving alcoholic beverages as the only panelist supporting the ban! A dwarf-tossing business owner, promoter, and dwarf “tossee” all opposed the ban. At least there was a medical researcher who spoke generally about the negative effects of violent entertainment.

And then there was the audience. In Chicago, it was supportive and included 16 LPA members, and four of Robert’s relatives. The reception was warm, friendly, and open to learning about little people. In New York, the reception was mixed. Although the majority appeared to favor a dwarf tossing ban, a sizeable and vocal group opposed infringing on the dwarf’s freedom of choice to engage in dangerous activity.

Clearly it was a no-brainer for LPA to do the Chicago educational show. But not knowing how Donahue would handle the dwarf tossing controversy in New York was a risk I had to take. Thankfully, the exposure helped propel the bill to ban dwarf tossing. Soon after the program, legislators began signing on as bill co-sponsors.

This post is a behind the scenes look at Donahue talk show appearances discussed in chapter 2—President Robert: The Second Term—and chapter 11—Biting the Legislative Dust—in “Always an Advocate,” the third book in my dwarfism trilogy, releasing on October 8, 2021. Updates are found at my website, https://angelamuirvanetten.com/always-an-advocate/.

Categories
Disability Rights Little People of America

Ask the Author About “Always an Advocate”

Author photo

What is the book about?

A demonstration of advocacy’s power to end discrimination and disrespect towards people with dwarfism and other disabilities in volunteer leadership, entertainment, public transportation, public buildings and facilities, emergency operations, voting, homeowner associations, social security disability benefits, and schools.

How did you pick the title?

A high school student recently asked me a question following my disability sensitivity presentation. It wasn’t the typical question a person with dwarfism gets—about clothes, driving, the height of my siblings, or if I have children. No, the question was, “How long have you been an advocate?” I had to think about that one for a moment; then it dawned on me. I’ve been an advocate for as long as I can remember. Always. After toying with various title ideas, Always an Advocate emerged as the best title choice. 

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Why did it take three books to tell your story?

Dwarfs Don’t Live in Doll Houses, the first book in my dwarfism trilogy, talks about my perspective on life as a single person. Because the book was published in 1988, after I was married, people were disappointed not to read about my whirlwind international romance with Robert Van Etten. We used to say, wait for book two.

My original intent was for Pass Me Your Shoes to be one book. However, the draft was too long and appealed to two different markets. As a result, I separated the manuscript into books two and three: Pass Me Your Shoes telling our personal marriage story and Always An Advocate focusing on advocacy.

Do you plan to write another book?

No! But then again, my original plan was two books so plans can change. For now, I’m quite content to write articles and weekly blog posts at https://angelamuirvanetten.com/blog.

Are there any photos in the book?

Yes, there are 17 photos supporting the text in multiple chapters.

When will the book be available?

Amazon is currently taking pre-orders on the e-book.

The official publication date is October 8, 2021 in recognition of October 8, 1997 when the six-inch reach barrier was broken in state and local building codes. Lowering the unobstructed side-reach standard from 54 to 48 inches in new or altered buildings and facilities made ATMs, gas pumps, elevators—everything activated with a push, pull or turn—accessible to people with dwarfism and other disabilities.

In what formats will the book be published?

E-book, print, and audiobook.

Who narrates the audiobook?

I narrated the audiobook myself in several two hour sessions with the support of a sound engineer.

Where can I get more information about the book?

Visit my website at https://angelamuirvanetten.com/books and Amazon’s book page to see the description, editorial reviews, product details, and biography. If you click on follow the author you’ll get updates as they become available. 

Do you have questions for the author?

Please reply with your questions and I’ll answer them in a future post.

Categories
Accessibility

A Trendy Olympic Sport – Hotel Bed Climbing?

Hotel Bed Height
Image by Solomon Rodgers from Pixabay

In our last hotel stay, we enjoyed accessibility in the parking lot, at the entrance and service counter, and in the elevator. We could even reach the key card slot for our room. But when we opened the door to our accessible room, we were dismayed.

It wasn’t something silly like the remote on top of the TV or towels on high shelves. No, it was height of the bed. How would we climb onto it? The bed was level with our chest and must have been at least 27 inches tall. At our height of 40 inches, this was an impossible feat. There was no stool in sight and none were available at the front desk.

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In the last decade, hotels have trended to taller beds, with the top of the mattress ranging in heights from 25 to 30 inches from the floor. Although we borrowed a stool from the gift shop, this solution would not work for people who use wheelchairs. The typical seat height of a wheelchair is 19 inches above the floor.  So a bed as tall as 30 inches creates a height difference of nearly one foot! An independent transfer is impossible and standing on a stool is unattainable.

So how could this happen in an accessible room? Doesn’t the Americans with Disabilities Act (ADA) address bed height? Well, not specifically; tall beds weren’t a problem in 1990 when the ADA was passed. As a result, the ADA Accessibility Guidelines (ADAAG) are silent on the subject. Even though ADAAG was updated in 2010, no bed height mandate was added.  

However, all is not lost for people with disabilities who don’t qualify for the “Olympic sport” of bed climbing. The hotel can be asked to make reasonable modifications in the assigned guest room. Engineering or maintenance staff can be called to lower the bed by removing the bed frame, box spring, or mattress and replace it with a lower profile mattress. 

If the hotel refuses to make the modification, complainants can take this access violation to court. For example,  an ADA Title III (42 U.S.C. §§ 12181-12189) lawsuit on inaccessible tall beds, Migyanko v. Aimbridge Hospitality, LLC, was filed in a Pennsylvania federal court on June 7, 2021. Although ADAAG does not cover hotel bed height, both the plaintiff and the U.S. Department of Justice argue that the ADA’s general nondiscrimination requirements apply and require hotels to make reasonable modifications where necessary to provide the hotel’s goods and services to people with disabilities.

Alternatively, a petition can be filed with the U.S. Access Board to change ADAAG to “require bed regulations in wheelchair accessible lodging facilities.” Gina Schuh has started this ball rolling. Her petition to the Access Board on bed design at change.org currently has 87,320 signatures.

So let’s celebrate the ADA’s 31st birthday by putting an end to hotel bed climbing. This is not a “sport” suitable for people with disabilities.

Read more about access issues in the first book of my dwarfism trilogy, Dwarfs Don’t Live in Doll Houses, Chapter 5, At Your Physical Pleasure. Pre-owned copies are available on Amazon and an e-book is coming soon.

Categories
Celebrations

Blog Anniversary – First Year Favorites

logo and tagline

ADA 30-Year Milestone, August 3, 2020, https://angelamuirvanetten.com/lift-on-bus/ 

Post excerpt: Thirty is a great age. . . The Americans with Disabilities Act reached this milestone on July 26, 2020—the day when disability rights were recognized as civil rights.

Staying Safe in Church, August 10, 2020, https://angelamuirvanetten.com/staying-safe-in-church/

Post excerpt: So why would a church reopen after a mandatory lockdown without . . . asking people to wear face masks? . . . It forces high-risk people . . . who depend on others to wear masks, to keep a safe distance at home.

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Jane Oliver comment: [I] came to the same conclusion you did here. . . I just don’t get what is so hard for anyone, especially Christians, to understand about how to love and serve others.

One Smile Worth 2,000 Chocolate Bars, October 12, 2020, https://angelamuirvanetten.com/one-smile-worth-2000-chocolate-bars/

Post excerpt: Six months after starting a new job, a kindergarten height toilet suddenly appeared in the bathroom. . . I had to ask, What did the company think I’d been doing all this time when I needed to use the bathroom?

What should I call you? November 2, 2020, https://angelamuirvanetten.com/what-should-i-call-you/

Post excerpt: The better question to ask is, What’s your name?

“Accessible” Public Bathroom Absurdities, November 16, 2020, https://angelamuirvanetten.com/accessible-public-bathroom-absurdities/

Post excerpt: On National Absurdity Day my mind jumps to my collection of absurd “accessible” public bathroom photos.

Kathy Bates comment: I’m both laughing and weeping at these photos. . . Disability is not for wimps!

Underdog Motivation, December 14, 2020, https://angelamuirvanetten.com/underdog-motivation/

Jessica Morgenthal comment: I have dwarfism. . . My 4th grade teacher told my parents that I would not amount to anything . . . My parents . . . pushed me to show her that she was wrong. . . I graduated [college] with a Bachelor of Science . . .with a 4.0 GPA. 

 “Death with Dignity” Laws Deadly to Disabled, January 18, 2021, https://angelamuirvanetten.com/death-with-dignity-laws-deadly-to-disabled/

Post excerpt: “Death with dignity,” as physician assisted suicide is euphemistically called, is legal in Washington, D.C. and eight states.

Vigilante Policing of Disabled Parking Spaces, February 8, 2021, https://angelamuirvanetten.com/vigilante-policing-of-disabled-parking-spaces/

Erica’s comment: I strongly agree . . . I know many people with hidden disabilities who have been harassed and treated unfairly because they don’t look like they need it.

Paulette Beurrier (guest). Celebrate People Blessed With Down Syndrome, March 22, 2021,https://angelamuirvanetten.com/celebrate-people-blessed-with-down-syndrome/  

Post excerpt: Faith was the first student with Down syndrome to graduate with a standard diploma in our county!

Susan’s comment: Our 16 year old grandson with Ds is a blessing to our entire family! 

Tackling Inaccessible Medical Equipment, April 19, 2021, https://angelamuirvanetten.com/tackling-inaccessible-medical-equipment/

Marge Carlisle comment: Great post and personal story. I need an eye exam and have been wondering how I will navigate my eye doctors exam rooms with my power wheelchair. It will elevate, but just navigating the room will be a tight squeeze.

Advocacy Makes Change Possible, May 17, 2021, https://angelamuirvanetten.com/advocacy-makes-change-possible/

The third book in my dwarfism trilogy—Always An Advocate—offers hope to those who are skeptical about changing society’s discriminatory treatment of people with dwarfism and other disabilities.

Measure Up for Independence, July 5, 2021, https://angelamuirvanetten.com/measure-up-for-independence/ 

Post excerpt: The Measure-Up Campaign was one of the many battles Little People of America won in our fight for independence [in the built environment].

Categories
International

Diving on the Great Barrier Reef Without a Scuba Tank

Great Barrier Reef

Scuba diving on the Great Barrier Reef had been on Robert’s bucket list for years. The reef, one of the seven wonders of the natural world, is the only living thing on earth visible from space. A decade ago, Robert couldn’t don a space suit to see the 1,429 mile reef. So he packed his custom-made wetsuit, snorkel, goggles and flippers to see the reef underwater. However, his trip of a lifetime to Port Douglas in Queensland, Australia was missing an essential document—a scuba diving certificate.

Knowing that other little people are certified scuba divers, Robert was optimistic he would qualify.

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He studied in a classroom, in the pool, and in the Jupiter, Florida inlet with a professional scuba diver who had experience teaching people with disabilities. But it was not to be. Scuba tanks of different sizes tipped Robert backwards and he was unable to flip himself over to see where he was going. Nothing worked. He would have to find another way to see the reef.

My Australian family joined us on the trip to Port Douglas. But when we stepped off the elevator on the way to our hotel rooms we were shocked to see a half flight of stairs. What? We had booked an accessible room! But the front desk insisted that there were none available. This meant that my brother, sister, and brother-in-law were stuck carrying two 100lb scooters up and down the stairs every time we went out.

But there was no point in staying mad. We determined to enjoy a week together surrounded by the beauty of God’s creation in wildlife parks and the Daintree Rainforest. We held a parrot, cockatiels, and a koala so big that it hardly fit on Robert’s lap. Our encounter with crocodiles occurred in the wild, but thankfully we were on a boat.

And Robert did find another way to go underwater on the Great Barrier Reef. In Diver Dan fashion of the 1960s TV show, he descended about 12 feet wearing a glass diver’s helmet attached to an oxygen hose. After diving staff helped Robert down the vertical ladder, they closely monitored the water level on his helmet as it lapped just under his nose!

There was no mermaid, but Robert was accompanied by my sister, Deborah, as they did their ocean walk on a platform above the reef. They marveled at fish swimming right past their faces. Robert capped off his day on the reef snorkeling at surface level with Deborah and my brother, Greg.

In contrast, I was content to view the fish and coral through the windows of a semi-submersible boat seated just one meter underwater. The closest I got to checking off a bucket “list” item was deplaning onto the tarmac in Cairns, Queensland in a bucket “lift;” this was necessary as the plane did not pull into a gate served by a jetway into the terminal.

So what items have you checked off your bucket list?

This is an expanded story from chapter 24, Dad’s Alzheimer’s Disease, in “Pass Me Your Shoes.” Retail links to the book are found at https://angelamuirvanetten.com.

Categories
Accessibility Little People of America

Measure Up for Independence

Measure Up

Independence is highly valued and celebrated by nations, people groups, and individuals. For some, independence relates to coming of age and, for others, it’s a prolonged struggle with many battles along the way. For people with dwarfism, independence in the built environment is a prolonged and ongoing struggle. The Measure-Up Campaign was one of the many battles Little People of America (LPA) won in our fight for independence.

When LPA applied for membership on a national committee setting building code standards in accessible and usable buildings and facilities in 1994, we had one primary objective—to change the standard to lower equipment with operable parts to be within the reach of people with dwarfism. We asserted our right to independently use ATMs, self-serve gas pumps, elevators, and the like.

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LPA knew that our request to amend the standard to lower operable parts on equipment by six-inches, from 54 to 48 inches, was like firing the first shot across the bow. We anticipated resistance from the affected industries represented on the committee. And the push back was immediate. Committee members returned fire with a call for more research. As LPA’s representative on the committee, I quickly learned that a committee call for research was “code” for delay and denial.

Instead of waiting for the committee to conduct the research, LPA took action to answer the questions:

  • Is 48 inches the right height?
  • How high can people with dwarfism reach?
  • And what effect will this have on people with other disabilities?

The 1995 LPA national conference in Denver, Colorado was perfectly timed for gathering the data to answer these questions. And so the LPA Measure-Up Campaign was born.

Robert Van Etten (a rehabilitation engineer and former LPA president) partnered with Dr. Ed Steinfeld (an architect, university professor, and Committee member) to design a reach range survey. One hundred subjects would have made the survey statistically valid. This number was easily surpassed when the Measure-Up Campaign captured the measurements of 172 adult little people. The reward of a Hershey chocolate kiss may have induced some to line up for measurements of their height, arm extension, eye height, and vertical reach, but the desire to independently use ATMs was a greater motivation. The results were documented in multiple tables and graphs in the study called the “Anthropometric National Survey of Adult Dwarfs of 1995.”

Within weeks of the survey, I returned to the Committee meeting armed with research results that pulled the rug out from under those determined to keep the status quo. The data documented that if the unobstructed side-reach standard was reduced to 48 inches about 80% of people with dwarfism would be able to reach ATMs and everything else activated with a push, pull, or turn.

Winning this key battle moved committee members beyond sympathy and forced them to face the need to break the six-inch reach barrier. People with dwarfism and other reach disabilities were one step closer to functioning independently in public places.

This post is adapted and excerpted from Chapter 15, Breaking the Six-Inch Reach Barrier, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities” releasing in October 2021.

Categories
Accessibility

CONTESTS: Breaking the Six-Inch Reach Barrier

Gas Pump

Over a trillion photographs are taken every year. And on an average day, 95 million photos are uploaded on Instagram and more than 300 million photos are uploaded on Facebook. Mobile phones’ were estimated to account for 89% of these photos in 2020, only 20 years after the first mobile phone with a built-in camera was introduced.

So let’s be counted in the trillion and celebrate National Camera Day on June 29th and Social Media Day on June 30th. Have some summer fun and enter the photo and/or social media contests running in July and August.

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But instead of taking typical photos, focus on the independence people with dwarfism—and half a million others with reach disabilities—gained when the six-inch reach barrier was broken on October 8, 1997. Submit photos of yourself, or someone you know in this population, independently using an ATM, self-serve gas pump, elevator, bathroom faucet, doorbell, cashier point of sale, or anything that is touch activated. And follow the contest specs outlined below.

PHOTO CONTEST

  1. GRAND PRIZE: US$100 digital Amazon gift card and a free e-book of “Always An Advocate: Champions of Change for People with Dwarfism and Disabilities.”
  2. Contestants must own the rights to the photo and can be either the model, photographer, or both.
  3. Contestants must obtain a written photo release (email or text) from photo models agreeing to their image being entered in the contest and, if selected, used in social and print media marketing campaigns for “Always an Advocate.”
  4. Photographers will receive a photo credit if their entry is used in a marketing campaign.
  5. Photo entries can date anywhere between 2000 and 2021.
  6. Specifications: 1200 x 1500 dpi.
  7. Increase your chance of winning, by entering photos with different models, or the same model using different devices.
  8. Write a caption naming the device depicted, the town or city and State of the photo location, and the photo model’s first name. 
  9. Enter your photo with a post on social media with the hashtag #AlwaysAnAdvocate and email to angela@angelamuirvanetten.com.
  10. The Van Ettens reserve the right to cancel the contest if there are fewer than ten entries.

SOCIAL MEDIA CONTEST

  1. PRIZE: US$25 digital Amazon gift card and e-book of “Always an Advocate.”
  2. Request a copy of the “Always an Advocate” book cover from angela@angelamuirvanetten.com.
  3. Post, share, tweet, and/or comment on the book cover with the goal of making it go viral on your social media platforms: Facebook, Instagram, Twitter, etc.
  4. Mark your posts with the hashtag #AlwaysAnAdvocate.
  5. All entrants will be entered into a drawing with a chance to win.

RULES APPLICABLE TO BOTH CONTESTS

  1. Eligibility: contestants and photo models must be age 18 or older.
  2. DATES: begins June 28 and ends August 30, 2021.
  3. Winners will be selected by the author, Angela Muir Van Etten and her husband, Robert Van Etten.
  4. Winners will be posted on
    a. Angela’s website at https://angelamuirvanetten.com on September 6, 2021, the date pre-orders begin for the “Always An Advocate” e-book edition; and b. Angela’s social media platforms: Amazon Author page, Facebook, Instagram, Goodreads, and Pinterest.
  5. All contest decisions are final and cannot be appealed.

This post enhances Chapter 15, Breaking the Six-Inch Reach Barrier, in “ALWAYS AN ADVOCATE: Champions of Change for People with Dwarfism and Disabilities” releasing in October 2021.

Categories
Disability Rights Guest

Will Congress Disenfranchise Voters with Disabilities?

Congress

Twenty-six national disability rights organizations, including Little People of America, are deeply concerned over the paper ballot mandate included in the For the People Act of 2021 (H.R. 1/S. 1). The bill addresses many barriers to voting in America, but mandates the use of paper ballots in both in-person and remote voting, which undermines the goals of the bill by restricting access for many voters with disabilities.

Any mandate of a paper-based voting system will inevitably harm voters with print disabilities as it would:

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(1) end all voting system innovation and advancement to produce a fully accessible voting system that provides enhanced security;

(2) limit voters with disabilities’ federal right to privately and independently verify and cast their ballots, and;

(3) prohibit digital voting which allows voters to read, mark, verify, and return their ballot completely electronically.

Although paper-based ballot voting options have become the preferred voting system to people who believe mandating the use of paper ballots is necessary to ensure the security of elections, it must be made abundantly clear that the ability to privately and independently hand mark, verify, and cast a paper ballot is impossible for many voters with print disabilities.

On March 11, 2021, the United States House of Representatives passed the For the People Act, and the legislation is now being considered in the U.S. Senate. In late March, the Senate held its first hearing on the bill and prior to the Senate’s May markup, national disability organizations once again outlined their concerns and offered necessary improvements and changes to the bill’s paper ballot mandate. Unfortunately, the fears of disability advocates on how the paper mandate will impact voters with print disabilities have not been addressed and only minimal changes have been made to the mandate to protect the rights of voters with disabilities.

The National Disability Rights Network urges Congress to make changes to the For the People Act to exclude voters with disabilities, covered by the Americans with Disabilities Act, from having to use a voter-verified paper ballot for both in-person and remote voting. Until fully accessible paper-ballot voting systems are available and ready for widespread use, accessible in-person and vote-by-mail voting options must be offered to ensure all voters in America can receive, mark, verify, and cast a private and independent ballot. The For the People Act cannot eliminate the only accessible voting options for many voters with disabilities, such as Direct Recording Electronic (DRE) voting machines and electronic absentee or vote-by-mail systems.

Although For the People Act includes some provisions to improve voter access for voters with disabilities, such as ensuring that drop boxes are fully accessible, these advances don’t mitigate the unintended consequence of the paper ballot mandate. Simply put, the current paper ballot mandate will exclude many voters from the ballot box, counteracting the purpose of this well-intended and important legislation.

Before paper-based voting systems become the law of the land, the concerns of voters with disabilities must be addressed.

Share this concern with your Senator today.

This post is a condensed version of “Disability Advocates Warn the For the People Act’s PaperBallot Mandate Will Disenfranchise Voters with Disabilities.” National Disability Rights Network. June 15, 2021. https://www.ndrn.org/resource/disability-advocates-warn-the-for-the-people-acts-paper-ballot-mandate-will-disenfranchise-voters-with-disabilities/?eType=EmailBlastContent&eId=1fbfcf73-7460-4276-a9cc-2e18b815bfe5.